How do you get financial support if you have an undiagnosed disorder?

I know I can't go back to work anywhere until I'm diagnosed, but my doctor said it could take months. The last time I saw my doctor, he said he can't sign me off sick for that long as that would simply be impractical. I don't think he understands the anxiety of this. I've being living in this bubble where I try to be normal and avoid social interations. I didn't think it mattered that I had a disorder if I just kept myself to myself (no harm done = no disorder). It's been going on for 30 years. I've been living in a bubble where I block out any negative remarks from others. I know I'm weird and I've been told that there is something wrong with my thought process and that I'm strange whenever I try to make friends with work colleages. 

I emailed work and told them I was going to ask my GP if there was an alternative way I could get financial support as I don't want to tax my company with months of sick pay. They replied and said I have 10 weeks full pay and 10 weeks at half pay. Should I just show my GP the email? They attached the policy for employees going through hard times. He said that he wanted to refer me to Occupational Health, but it can only be via a phone call and strictly not on the work premises. 

Yikes! I've only recently stopped blocking the reality of my condition. I don't know if it's ADHD, autism, brain damge from a childhood attack or what? It's undiagnosed. I just know I'm a good person. I want to get out of my company's hair. If would have been different if I applied for the job and mentioned on my CV that I had a diagnosed disorderas was accepted on those grounds. I knew I had anxiety and was strange, but I didn't think it would affect my performance.

So here I am. 

Everything just flipped on it's head other the last 3 weeks I've been signed off sick. I've been blocking so many things each day that confirm autism etc.

From my thoughts and to the way others interact with me. I can't do this anymore. Sometime people I don't know really want to talk to me at work and are very nice about it. I say 'Good Morning', but I can't engage in a regular conversation for long so I close it. There;'s a nice woman that works there that always says "Good Morning". I say "Good Morning". "Are you ok?". "Good thank you". We've had the same conversation for 4 YEARS!.

I see it all now. I see it.

My mother has said that it's showing the older I get, but my doctor said that it's harder to diagnose adults.

I don't want to think about it. I wish I could just do gardening at my mum's home and not get diagnosed, but I have to pay for things. I can talk for about 2 mins max. I've read that the formal autism assessment is something like 1.5hrs! That is absolutely awful. I don't want to be that exposed. All on tape.

  

Parents
  • Hello, your situation may have changed by now and you may know this already, but just in case, my situation was very similar to yours. If you're in the UK, you CAN get Universal Credit, and the Limited Capability for Work supplement to Universal Credit, even without an official diagnosis. Contact your local job centre, or go on the Universal Credit website, to apply for this. You may be entitled to P.I.P (Personal Independence Payments) as well, but I haven't investigated this yet personally. Main thing is keep getting sick notes from your GP as evidence of your state of health (even if you no longer need them for work, you'll need them for the job centre, and they should understand this). If you're certain leaving your job is the right thing to do (it may not be but that's up to you), you'll need to explain to the job centre how this was on health grounds, otherwise they can sanction you for leaving a job voluntarily. It can be quite a stressful process but it is possible for you to explain you are considering a diagnosis for autism/ADHD/PTSD/Depression etc, or even that you are self-diagnosed. They are more interested in how your individual symptoms affect your daily life and ability to work, rather than official diagnoses and labels per se. Depending on the severity of your symptoms, your work coach at the job centre may or may not require you to search for work within your capabilities. I know it's hard if you're used to keeping things quiet, but I found, when applying for financial support in particular, you need to be absolutely clear and open about your difficulties and how they make life harder for you. It can feel scary being so exposed, but sometimes it's the only way to tell people that you need support. Print your posts off from here for them to read if you need to. Waiting lists for diagnoses can be horrendously long, and I only got mine after I'd been through the whole process! Before that, I just had to keep asking for sick notes. 

    Obviously every situation is different and just because I've had success going this route, there's no guarantee it will be the same for you, but I hope it's helpful to know it's a possibility!

  • Thank you,

    I can't return to my current job as it's my supervisor that wants to get rid of me. I think he's happy now that I'm gone. I'm currently on sick pay. I had to take time off work to go to hospital due to a servere disease they found in a colonoscopy. I showed him the hospital letters and he agreed to let me attending the hospital appointments, but then served me a disciplinary for my attendance. During the disciplinary, I found out that he didn't inform the company of my disease. I came to him about a co-worker that was getting bullied and got, "What is it now you ****" under his breath, but enough for me to clearly hear it. Then asked what the problem was. I think he tried to make me quit by doubling my work load as well.  I get comments from my team leader like, "I don't know who you think you are?". A toxic environment. 

    I can't work there. From my track record, I can't work anywhere without upsetting people.  It's werid because I always do what I'm told at work and do the best I can. I don't understand the hate. There's one co-worker that talks to me. I only talk about food and cats. I think I annoy people because they find me simple, but who cares if I'm doing my job properly? 

    My doctor has put me on sertraline due to my anxiety and according to his instructions, I now have to double the dose from today. 

    It has supressed my anxiety, but at a cost. I've stopped vomiting ona daily basis, but I can't concentrate or sleep properly. I don't feel hungry anymore. 

    Do people go to work on sertraline? At what point do you come off it? My doctor has asked me to fill out an AQ-10 form and wrte down all the things that make me think I'm autistic, but I can't atm due to the sertraline. I'll get it done this week. 

    My life has just flipped on it head and I have no idea where I'm going anymore. It was coming. It was just a matter of time. I block out the things from my mind that certain people do to me and just try to get on with it. 

    Thank you again for the advise.

    On top of that, I really need to ask my doctor for an MRI scan. When I got assaulted as a kid, I was punched unconsious and a man stamped on my head over 20 times. He tried to kill me. Ever since then, I can now feel my brain. I know that sounds werid, but I can feel it. I haven't told anyone because I don't want to be disabled. I want to be normal. I don't want to be locked up in a psychiatric hospital. I'm going to tell my doctor the next time I see him. I think an MRI scan will reveal everything.

    My school teachers advised my mother to get me checked out for austism before I was assaulted.

    There was a time before the head stamps where I got another possible brain injury. I got picked on a lot as a kid and one kid at school was learning judo. We were all getting changed after cross counry in the park and the changing rooms had a concrete floor. He attacked me when I was naked and flipped me upside dowen. I landed on my head. I was vomiting. The teacher said I didn't know my name and I was in hospital for 3 days. The teacher drove the pupil to the hospital to appologise to me. 

    I wish I didn't delete so many post here. I should have saved them. My memory is really bad.

Reply
  • Thank you,

    I can't return to my current job as it's my supervisor that wants to get rid of me. I think he's happy now that I'm gone. I'm currently on sick pay. I had to take time off work to go to hospital due to a servere disease they found in a colonoscopy. I showed him the hospital letters and he agreed to let me attending the hospital appointments, but then served me a disciplinary for my attendance. During the disciplinary, I found out that he didn't inform the company of my disease. I came to him about a co-worker that was getting bullied and got, "What is it now you ****" under his breath, but enough for me to clearly hear it. Then asked what the problem was. I think he tried to make me quit by doubling my work load as well.  I get comments from my team leader like, "I don't know who you think you are?". A toxic environment. 

    I can't work there. From my track record, I can't work anywhere without upsetting people.  It's werid because I always do what I'm told at work and do the best I can. I don't understand the hate. There's one co-worker that talks to me. I only talk about food and cats. I think I annoy people because they find me simple, but who cares if I'm doing my job properly? 

    My doctor has put me on sertraline due to my anxiety and according to his instructions, I now have to double the dose from today. 

    It has supressed my anxiety, but at a cost. I've stopped vomiting ona daily basis, but I can't concentrate or sleep properly. I don't feel hungry anymore. 

    Do people go to work on sertraline? At what point do you come off it? My doctor has asked me to fill out an AQ-10 form and wrte down all the things that make me think I'm autistic, but I can't atm due to the sertraline. I'll get it done this week. 

    My life has just flipped on it head and I have no idea where I'm going anymore. It was coming. It was just a matter of time. I block out the things from my mind that certain people do to me and just try to get on with it. 

    Thank you again for the advise.

    On top of that, I really need to ask my doctor for an MRI scan. When I got assaulted as a kid, I was punched unconsious and a man stamped on my head over 20 times. He tried to kill me. Ever since then, I can now feel my brain. I know that sounds werid, but I can feel it. I haven't told anyone because I don't want to be disabled. I want to be normal. I don't want to be locked up in a psychiatric hospital. I'm going to tell my doctor the next time I see him. I think an MRI scan will reveal everything.

    My school teachers advised my mother to get me checked out for austism before I was assaulted.

    There was a time before the head stamps where I got another possible brain injury. I got picked on a lot as a kid and one kid at school was learning judo. We were all getting changed after cross counry in the park and the changing rooms had a concrete floor. He attacked me when I was naked and flipped me upside dowen. I landed on my head. I was vomiting. The teacher said I didn't know my name and I was in hospital for 3 days. The teacher drove the pupil to the hospital to appologise to me. 

    I wish I didn't delete so many post here. I should have saved them. My memory is really bad.

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