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talk about spectrum

longman

I went to a lecture last night by a paediatric neurologist about new directions in autism. There were some interesting ideas that have given me something to think about, I thought I might share the points that struck me.

On the autistic spectrum a division was made between about 1.5% who qualified for an official diagnosis and up to 30% who had significvant social interaction difficulties on that account, but were outside official diagnosis. That at least is comforting with regards to people saying everyone is on the spectrum. Why more of the 30% aren't diagnosed seems to lie with politics and maintaining statistics about health, as well as the cost factor.

I had formed my own theory that my difficulty socialising caused me to overly analyse and worry about why I couldn't socialise properly, and why things went wrong. And that led to low self esteem and anxiety.

The perspective I heard last night was that NTs don't develop an understanding of social cognition processes because it happens instinctively so they don't have to analyse it and don't think about how it comes about (so presumably don't even remember social gaffs). Whereas people on the spectrum by necessity analyse social interchanges and become expert at it (but at the cost of increased stress and worry).

Main message was the need to increase self esteem and self confidence, and give children on the spectrum space to explore and expand their knowledge. A lot of harm done by trying to get children on the autistic spectrum to be like their parents, or fit parental ideas of success. The evidence seems to be that given the opportunity to develop special interests and skills, many children on the spectrum do better.

Which brings me back to an underlying concern of mine, voiced in the lecture, that early diagnosis may be imposing unnecessary restriction by trying to change things, and doing more harm than good.

I confess I'm not sure where my preconceived ideas merge with the talk in this synopsis, so if anyone has heard similar talks, but not sure I've got the facts right,  its a personal impression here. Likewise apologies to anyone giving such talks if I've got things askew.

Parents

  • True Colors - like yourself, I had to adapt to the NT world. I just got out there and did the education and the work. Having reached my fifties before diagnosis I appeared outwardly to have done everything NT quite well. Inside my head it was quite different, and my experience of the adult NT world was quite different to anyone I knew, with the exception of my sibling.

    My adapting was in behavioural respects - not in the way I thought or the sensory and communication problems or the dyspraxia I had. Acting like an NT was done despite these problems.

    Your comment that you have noticed some diagnosed children, once adult, being unable to cope in the NT world is significant.

    I am assuming these children had help to adapt their outward behaviour after diagnosis, by being taught to behave in a way more akin to their NT peers. Your observation questions whether adapting the child's outward behaviour does have a lasting effect when, grown-up, it is finally exposed to the pressures of living in the adult world. 

    I may have fared better, had diagnosis been around when I was a child. But adapting, to me, seems to be a life-long activity.  Smile

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  • True Colors - like yourself, I had to adapt to the NT world. I just got out there and did the education and the work. Having reached my fifties before diagnosis I appeared outwardly to have done everything NT quite well. Inside my head it was quite different, and my experience of the adult NT world was quite different to anyone I knew, with the exception of my sibling.

    My adapting was in behavioural respects - not in the way I thought or the sensory and communication problems or the dyspraxia I had. Acting like an NT was done despite these problems.

    Your comment that you have noticed some diagnosed children, once adult, being unable to cope in the NT world is significant.

    I am assuming these children had help to adapt their outward behaviour after diagnosis, by being taught to behave in a way more akin to their NT peers. Your observation questions whether adapting the child's outward behaviour does have a lasting effect when, grown-up, it is finally exposed to the pressures of living in the adult world. 

    I may have fared better, had diagnosis been around when I was a child. But adapting, to me, seems to be a life-long activity.  Smile

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