talk about spectrum

I went to a lecture last night by a paediatric neurologist about new directions in autism. There were some interesting ideas that have given me something to think about, I thought I might share the points that struck me.

On the autistic spectrum a division was made between about 1.5% who qualified for an official diagnosis and up to 30% who had significvant social interaction difficulties on that account, but were outside official diagnosis. That at least is comforting with regards to people saying everyone is on the spectrum. Why more of the 30% aren't diagnosed seems to lie with politics and maintaining statistics about health, as well as the cost factor.

I had formed my own theory that my difficulty socialising caused me to overly analyse and worry about why I couldn't socialise properly, and why things went wrong. And that led to low self esteem and anxiety.

The perspective I heard last night was that NTs don't develop an understanding of social cognition processes because it happens instinctively so they don't have to analyse it and don't think about how it comes about (so presumably don't even remember social gaffs). Whereas people on the spectrum by necessity analyse social interchanges and become expert at it (but at the cost of increased stress and worry).

Main message was the need to increase self esteem and self confidence, and give children on the spectrum space to explore and expand their knowledge. A lot of harm done by trying to get children on the autistic spectrum to be like their parents, or fit parental ideas of success. The evidence seems to be that given the opportunity to develop special interests and skills, many children on the spectrum do better.

Which brings me back to an underlying concern of mine, voiced in the lecture, that early diagnosis may be imposing unnecessary restriction by trying to change things, and doing more harm than good.

I confess I'm not sure where my preconceived ideas merge with the talk in this synopsis, so if anyone has heard similar talks, but not sure I've got the facts right,  its a personal impression here. Likewise apologies to anyone giving such talks if I've got things askew.

Parents
  • Hello longman- I couldn't believe what I was reading there.  They really said that people get addicted to bullying and want it to continue? I have to say that I was bullied for twelve years - right through school  - and not a day passed when I did not want it to stop. It was nightmare and I would gladly have stepped out of it if I could have done.

    Was someone confusing bullying with abuse and co-dependency?
      -  Where the female (usually) is bullied/abused and then the perpetrator says "Sorry, sorry, sorry, I will never do it again. Will you forgive me." Then is nice to the victim who forgives him. Of course the perpetrator does it again, but often in the victim's mind the niceness afterwards outweighs the horror of the abuse and she stays with him.

    The idea that one recovers from ASD is I think more linked to those budget and medical stats... I would imagine that a person will have periods of coping better and the outward signs of the ASD might subside.  But you've still got the same problem inside, and it will become more noticable outwardly when conditions put more pressure on you. You still have those core problems - not cured, but like a saucepan on a 'gentle simmer' instead of a full boil.

    There is a danger that regarding an ASD as cured by the time you are adult, will cause a lot of adults to be turned away from being assessed and told "You can't have an ASD because adults don't get them."

    Personally, I don't agree with people not being given a diagnosis if they appear to be coping - after all they'll still have the condition won't they?  

Reply
  • Hello longman- I couldn't believe what I was reading there.  They really said that people get addicted to bullying and want it to continue? I have to say that I was bullied for twelve years - right through school  - and not a day passed when I did not want it to stop. It was nightmare and I would gladly have stepped out of it if I could have done.

    Was someone confusing bullying with abuse and co-dependency?
      -  Where the female (usually) is bullied/abused and then the perpetrator says "Sorry, sorry, sorry, I will never do it again. Will you forgive me." Then is nice to the victim who forgives him. Of course the perpetrator does it again, but often in the victim's mind the niceness afterwards outweighs the horror of the abuse and she stays with him.

    The idea that one recovers from ASD is I think more linked to those budget and medical stats... I would imagine that a person will have periods of coping better and the outward signs of the ASD might subside.  But you've still got the same problem inside, and it will become more noticable outwardly when conditions put more pressure on you. You still have those core problems - not cured, but like a saucepan on a 'gentle simmer' instead of a full boil.

    There is a danger that regarding an ASD as cured by the time you are adult, will cause a lot of adults to be turned away from being assessed and told "You can't have an ASD because adults don't get them."

    Personally, I don't agree with people not being given a diagnosis if they appear to be coping - after all they'll still have the condition won't they?  

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