talk about spectrum

I went to a lecture last night by a paediatric neurologist about new directions in autism. There were some interesting ideas that have given me something to think about, I thought I might share the points that struck me.

On the autistic spectrum a division was made between about 1.5% who qualified for an official diagnosis and up to 30% who had significvant social interaction difficulties on that account, but were outside official diagnosis. That at least is comforting with regards to people saying everyone is on the spectrum. Why more of the 30% aren't diagnosed seems to lie with politics and maintaining statistics about health, as well as the cost factor.

I had formed my own theory that my difficulty socialising caused me to overly analyse and worry about why I couldn't socialise properly, and why things went wrong. And that led to low self esteem and anxiety.

The perspective I heard last night was that NTs don't develop an understanding of social cognition processes because it happens instinctively so they don't have to analyse it and don't think about how it comes about (so presumably don't even remember social gaffs). Whereas people on the spectrum by necessity analyse social interchanges and become expert at it (but at the cost of increased stress and worry).

Main message was the need to increase self esteem and self confidence, and give children on the spectrum space to explore and expand their knowledge. A lot of harm done by trying to get children on the autistic spectrum to be like their parents, or fit parental ideas of success. The evidence seems to be that given the opportunity to develop special interests and skills, many children on the spectrum do better.

Which brings me back to an underlying concern of mine, voiced in the lecture, that early diagnosis may be imposing unnecessary restriction by trying to change things, and doing more harm than good.

I confess I'm not sure where my preconceived ideas merge with the talk in this synopsis, so if anyone has heard similar talks, but not sure I've got the facts right,  its a personal impression here. Likewise apologies to anyone giving such talks if I've got things askew.

Parents
  • Several people on this thread have mentioned bullying. One of the things the talk included, briefly, in passing, was that people who are bullied a lot get addicted to being bullied. I tried looking this up on the web but found nothing to support it. The implication, not fleshed out, was that people who are bullied a lot develop a need for it to continue. Something worth exploration.

    Another thing the speaker mentioned briefly was that you can recover from autism, and that lots of people do, if they get sufficient self confidence and find avenues to follow as a career that use their skills. That is in some way true of myself.

    But I also question this as my eye contact issues, social skills, and some environmental problems persist. So I'd love to see the scientific evidence for his assertion.

    I would have liked to ask, but the speaker did not stay long for questions, about the effect such assertions have on adults on the spectrum. It is all very well to say that people can be cured, but the system is all for getting people off the books, and you can have your diagnosis retracted.

    Thing is, as we all know, getting a diagnosis is long and hard, with many pitfalls. So if you get un-diagnosed, then need help again in the future, I guess you are more or less back to square one.

    Hardly inspirational for people to strive to recover!

    But then its really all about money isn't it. And medical statistics....

Reply
  • Several people on this thread have mentioned bullying. One of the things the talk included, briefly, in passing, was that people who are bullied a lot get addicted to being bullied. I tried looking this up on the web but found nothing to support it. The implication, not fleshed out, was that people who are bullied a lot develop a need for it to continue. Something worth exploration.

    Another thing the speaker mentioned briefly was that you can recover from autism, and that lots of people do, if they get sufficient self confidence and find avenues to follow as a career that use their skills. That is in some way true of myself.

    But I also question this as my eye contact issues, social skills, and some environmental problems persist. So I'd love to see the scientific evidence for his assertion.

    I would have liked to ask, but the speaker did not stay long for questions, about the effect such assertions have on adults on the spectrum. It is all very well to say that people can be cured, but the system is all for getting people off the books, and you can have your diagnosis retracted.

    Thing is, as we all know, getting a diagnosis is long and hard, with many pitfalls. So if you get un-diagnosed, then need help again in the future, I guess you are more or less back to square one.

    Hardly inspirational for people to strive to recover!

    But then its really all about money isn't it. And medical statistics....

Children
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