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Academic Paper on Autistic Burnout

Ausomely Autistic

Hello, I started to read this paper after looking on Harry Thompson’s website. I know this topic is commonly discussed on this forum, so hopefully it will be useful or interesting for quite a lot of us. Even though there is a lack of information/resources on this topic, it is good to know that at least some autistic people have had their experiences documented in this study. There is a very insightful quote as the title.

https://www.liebertpub.com/doi/10.1089/aut.2019.0079

 I hope this is useful for my fellow autistic people.

Parents

  • Yes, Dora Raymaker is doing some good work in this area.  Likewise Kieran Rose, Amy Pearson and, for autistic children and teens, Jodie Smitten.  

    I can find more in the way of descriptions of burnout than help though.  I suppose it's a highly individual matter as to what will support someone, but I'm really stuck when it comes to helping the young adults in my own household.  And I find the apparent overlap between the definitions of burnout and autistic catatonia quite confusing too.   

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  • Yes, Dora Raymaker is doing some good work in this area.  Likewise Kieran Rose, Amy Pearson and, for autistic children and teens, Jodie Smitten.  

    I can find more in the way of descriptions of burnout than help though.  I suppose it's a highly individual matter as to what will support someone, but I'm really stuck when it comes to helping the young adults in my own household.  And I find the apparent overlap between the definitions of burnout and autistic catatonia quite confusing too.   

Children
  • in reply to Jenny Butterfly
    Jenny Butterfly said:
    Likewise Kieran Rose, Amy Pearson and, for autistic children and teens, Jodie Smitten.  

    These autistic people are really great advocates/researchers who provide great insight for both other autistic people and non autistic parents. Have you watched Aucademy’s videos on burnout with Jodie Smitten and also Kieran Rose’s appearances covering masking? Very informative and also easily understandable.

    Jenny Butterfly said:
    I can find more in the way of descriptions of burnout than help though.  I suppose it's a highly individual matter as to what will support someone, but I'm really stuck when it comes to helping the young adults in my own household. 

    This must be really difficult to manage as a family. I hope you find it reassuring to know that  your young adults are not alone, there are many another young autistic people going through similar experiences.

    I think you are right though the experience of autistic burnout is so personal that it is difficult to recommend any specific help. I would generally recommend some autistic self care with a low arousal/low expectation environment. Unmasking in a safe space is also a really important part of autistic self care as burnout can be caused by excessive masking. Like I said before Jodie Smitten’s videos are really good. These videos might be useful:

    https://youtu.be/ZjaeP-Gf9uk

    https://youtu.be/Tu07ouTUDBQ

    Jenny Butterfly said:
    And I find the apparent overlap between the definitions of burnout and autistic catatonia quite confusing too.  

    Yes so do I, I think they can look quite similar. Catatonia might a physical response to burnout so that you aren’t actually able to adhere to anymore expectations. I think catatonia might also be similar to autistic shutdown because the stupor may be a freeze response.  I want to do more research on this topic.

    These articles might be interesting and hopefully provide some clarification about catatonia:

    https://neuroclastic.com/is-it-selective-mutism-or-chronic-catatonia/

    https://neuroclastic.com/chronic-catatonia-order-yourself-into-action/

    I hope my response is helpful and you are able to access the support you need for your young adults.