PIP reclaim

I am not receiving PIP (after being kicked off the register because I have a job and travel) and currently looking to reapply which I have been obsessing about uncontrollably. 

I am not living independently (still living with parents) and my parents are talking about moving house; I am really not happy about this and I go straight into meltdown whenever they talk about it. I cannot survive without my work commute and autism social club. If I move and have to get another job or attend another social club, it would be an absolute nightmare!

My parents have talked about supported living or social housing for me over the last couple of years. I am not happy that I am not receiving PIP. I masked in the assessment because the assessor was so judgemental. I did receive PIP in the end but was kicked off the register during the first covid lockdown because I masked in the assesment; especially when I don't understand what they are asking (which is also what could have gone wrong). Sometimes I don't understand or I deny I may struggle to live independently (such as cooking, basic health and safety, agoraphobia, meltdowns, paying bills and rent etc...). I really feel it's my fault. 

I went to special school up (from year 7 to college years) where in college years they said they'll teach independent living and managing finances. I really struggled to understand finances and the teachers were not qualified special education teachers so they would gaslight and ab*s£ me when I don't have the mental capacity to understand what I was being taught. I even cry about it sometimes. 

Any advice and guidance on supported living or social housing would be good. I need my mum to advocate for me as I can't do that for myself as no one believes me, I understand why she doesn't want to because I'm an adult but she know me best more than anyone. She even said she doesn't have the energy to go through the tribunal process (like we nearly did with school many years ago). I don't know who will be there and who can help me. 

  • Dear queer_autistic_enby26298,

    Thank you for sharing this with our community. While we are waiting for the community to respond, you may consider looking at the website Gold Lane Housing, https://www.glh.org.uk/. This is a website about social housing lad lords for people with a learning disability. Their phone number is 0300 003 7007.

    You may also like to look at the website Centrepoint, https://centrepoint.org.uk/, which provides health support and life skills. Their phone number is  0808 800 0661

    Regarding making new friends in a new place, you may be interested in contacting a local National Autistic Society branch. Our branches offer support to local autistic people and their families. If you are interested in checking if there is a local branch near to you, please follow the link below:

    https://www.autism.org.uk/what-we-do/local-branches

    Our branches are volunteer-led, and as such every branch and group is different. Some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own drop-in service. You will need to check with a branch directly for more information on whether they are able to provide a particular service that you are interested in.

    If you were interested in starting a branch or group, please email branchservices@nas.org.uk

    I hope this helps.

    Best regards,

    Eunice Mod