Late diagnosis, nothing prepared me for this

Hello everyone,

Im 25F and was diagnosed this month after a lifetime of struggling and confusion.

My diagnosis has left me feeling mostly happy- someone has had the patience to listen, and recognises my struggles without dismissing me. It gives me more confidence because I spent so long being told "there's nothing wrong with her she's just badly behaved" it just became the default for me to think I just had a really bad attitude, but not being able to help it.

What I'm really struggling with is the anger and resentment I feel towards family and the adults I was supposed to be protected by growing up. I feel so angry that nobody cared enough to notice or raise a flag that maybe there was something up with me?

I can't stop asking myself things like "Did my parents honestly think this was normal?" or "Weren't my teachers supposed to be trained to pick up on students that seem heavily isolated and have difficulties?"

Has anyone else had to sit with feelings like this after diagnosis? I hope over time it will subside, but the more things click into place for me and start making sense, the less it makes sense that I went this long without help.

Parents
  • I can't stop asking myself things like "Did my parents honestly think this was normal?" or "Weren't my teachers supposed to be trained to pick up on students that seem heavily isolated and have difficulties?"

    I 100% had this thought and still think about it from time to time! Surely someone should have noticed I was struggling or all my school reports had the same points about not contributing etc. 

    Although Autism is by no means a "new" thing I think it still "new" to a lot of people who weren't exposed to it before or didn't know what it was. My wife is a perfect example of this, she is the school year below me (both now late 20's) and was one of 3 diagnosed in the entire school year. Whereas now it seems more like there would be 3 diagnosed per class. (guestimates)

    We put down me being missed to the fact I am an only child who lived in a very rural/remote area so spent a lot of time on my own with no one to be compared to. Over time as I process it more I don't think about the past and why it wasn't picked up and focus more on the future and how it will change things. After all you can't change the past...

    I'm also told females are much less likely to be diagnosed/identified anyway but I don't know enough about it to comment on it really. 

    Congrats on the diagnosis though. Glad it brought some happiness! 

Reply
  • I can't stop asking myself things like "Did my parents honestly think this was normal?" or "Weren't my teachers supposed to be trained to pick up on students that seem heavily isolated and have difficulties?"

    I 100% had this thought and still think about it from time to time! Surely someone should have noticed I was struggling or all my school reports had the same points about not contributing etc. 

    Although Autism is by no means a "new" thing I think it still "new" to a lot of people who weren't exposed to it before or didn't know what it was. My wife is a perfect example of this, she is the school year below me (both now late 20's) and was one of 3 diagnosed in the entire school year. Whereas now it seems more like there would be 3 diagnosed per class. (guestimates)

    We put down me being missed to the fact I am an only child who lived in a very rural/remote area so spent a lot of time on my own with no one to be compared to. Over time as I process it more I don't think about the past and why it wasn't picked up and focus more on the future and how it will change things. After all you can't change the past...

    I'm also told females are much less likely to be diagnosed/identified anyway but I don't know enough about it to comment on it really. 

    Congrats on the diagnosis though. Glad it brought some happiness! 

Children
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