Awaiting Adult (42 Yrs old) ASD Assessment

Hello all, I hope you are well.

I have several concerns regarding the ASD assessment and I wondered if you guys had any advise or tips.

1) I went into care at 15 (self referred) and have zero contact or information about my life before the age of 18 - its like I didn't exist - no school reports, photos, journal entries or biological relationships to reflect upon my childhood experience - will this affect diagnosis? I have been warned that I may only receive a "working Diagnosis" due to being unable to "prove" traits existed in childhood. Prove = to provide evidence of and all I have in my memory's and perception and I am unsure this will meet the criteria required.

2) I cant research the process or the ASD assessment centre - I like to get photos inside buildings of new places so I know where to go when inside (toilets) check out lighting and what type of clocks they use, where to wait (if I'm waiting).

Well I just cant plan appropriately - I'm conscious of assessment bias if I do too much research on the mechanics of the assessment but I have so many other questions outstanding that I would like to resolve prior to attending.

Any advise - what happens socially at these assessment interactions?

Many thanks for your time and patients  

Parents
  • Hiya,

    I`m 41 and having a similar dillemma. I'm speaking to a therapist and doing history timelines etc - but there are some big gaps in what I know. My mum suffers with depression, so I`m trying not to bother her with it all too much.

    Do you have any particular medical history that might be relevant (A&E trips, illnesses that had any note?) If you have the NHS app you can get hold of your GP record going back as far as you do (in theory) - but to top that up I`ve also done a Subject Access Request with my local hospital to try and get more dates and information. I know I was a late bedwetter and used to throw awful tantrums about having to wear an eye patch as a kid - so I`m trying to place dates. I also know I went to A&E for a hip injury and watched Angela Rippon host a quiz show based on tennis... I`ve no idea when this was though (So gawd knows why I remember the quiz!)

    As with the place and the process, try not to worry. The assessment centre will probably be the usual grubby white walled place medical facilities usually are. For other things - use the clock on your phone and take/use whatever is going to make you feel the most comfortable. Be our pioneer - find that info for all of us!

    Good luck!

Reply
  • Hiya,

    I`m 41 and having a similar dillemma. I'm speaking to a therapist and doing history timelines etc - but there are some big gaps in what I know. My mum suffers with depression, so I`m trying not to bother her with it all too much.

    Do you have any particular medical history that might be relevant (A&E trips, illnesses that had any note?) If you have the NHS app you can get hold of your GP record going back as far as you do (in theory) - but to top that up I`ve also done a Subject Access Request with my local hospital to try and get more dates and information. I know I was a late bedwetter and used to throw awful tantrums about having to wear an eye patch as a kid - so I`m trying to place dates. I also know I went to A&E for a hip injury and watched Angela Rippon host a quiz show based on tennis... I`ve no idea when this was though (So gawd knows why I remember the quiz!)

    As with the place and the process, try not to worry. The assessment centre will probably be the usual grubby white walled place medical facilities usually are. For other things - use the clock on your phone and take/use whatever is going to make you feel the most comfortable. Be our pioneer - find that info for all of us!

    Good luck!

Children
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