Help / advice with Aspergers/hfa daughter








Not sure if this the right place to ask this.
My daughter was diagnosed with aspergers at 18, she is now almost 31.  We have never had any support with her since diagnosis.

She lives with us. As myself and my husband are getting older, and 2 of our other children have left home, with our youngest leaving home soon. Our thoughts have turned to downsizing in the next few years.

Our  hfa daughter seems to think i can fix anything /everything, she DOES however work part-time as a cleaner,  which is a fantastic achievement.

The issue i have is.... when we downsize, we want it to be just us ie myself and my husband. We have started to discuss this openly, so it doesn't come out of the blue.

She is very resistant to this and wants to come with us, our daughter that is due to move out has said we are unreasonable in not wanting to take our hfa daughter.


Our hfa daughter is always present, we cannot have a private conversation unless she is at work, or we go out for a walk or out in the car.  She does not help around the home, her room is a mess and only gets hoovered or cleaned when I do it.

Where can I get help to achieve her living independently of us? The situation has become very stressful for me. 

Parents
  • If she works as a cleaner, chances are she's exhausted from cleaning. Is she allowed to use natural cleaning products or is she subjected to chemical VOCs every day? This is really really important as 1. most of us are hyper-sensory and also intolerant of unnatural chemically created particulates / products and 2. an ongoing intake of these will turn her into a survival-mode based zombie state. 

    But 18 to 31 and no support - goodness. Does she have an autistic group or an interest group she is part of once a week? Does she maybe have a church group or a weekly hobby? Chances are without intentional rebuilding of the self, without researching her strengths and taking workshops and reading great sociologists like Erich Fromm, she won't transition. It doesn't sound like she's had help becoming her best self. If cleaning part time were something she enjoyed - the organisation, the sparkling wonder of it all, she'd mirror that at home. But it sounds like she is barely aware of her self, her soul, her desires, her possibilities. 

    A good weekly schedule for Autistic individuals can be incorporating a trip to the library, the art gallery the museum, and a few other similar exhibits. Every Thursday or Saturday. My son is 25 and I set schedules of things to learn. As he's gotten older, our holidays are incorporating one event or workshop involving living in the wild - foraging, fishing, birch tapping, gardening, camping (though he's put his foot down and it's only gallamping). He's moved out at intervals, mind he isn't autistic like me, but dyslexic and hyper sensory. However, the Autist can turn our hyper-sensory and hyper-focused selves into specialists. We can be incredibly reliable with the details of things and troubleshooting problems before they become problems - these are natural traits which companies need. We can be particular and precise, and when exposed to choices of lifestyles or exposed in general, can build a purposeful life. 

    The Autistic self can actually thrive in a solo space. Sometimes in a community building, but with our own breathing space without LEDs and interruptions and harsh scents or sounds. She might not have realised this. If you can book a yoga class, help her intentionally engage in mindfulness and the art of listening to the self. Most parents are beside themselves because their autistic child wants to be alone. Spending a few years incredibly focused on helping her grow into herself will afford you the long-term results you desire. 

Reply
  • If she works as a cleaner, chances are she's exhausted from cleaning. Is she allowed to use natural cleaning products or is she subjected to chemical VOCs every day? This is really really important as 1. most of us are hyper-sensory and also intolerant of unnatural chemically created particulates / products and 2. an ongoing intake of these will turn her into a survival-mode based zombie state. 

    But 18 to 31 and no support - goodness. Does she have an autistic group or an interest group she is part of once a week? Does she maybe have a church group or a weekly hobby? Chances are without intentional rebuilding of the self, without researching her strengths and taking workshops and reading great sociologists like Erich Fromm, she won't transition. It doesn't sound like she's had help becoming her best self. If cleaning part time were something she enjoyed - the organisation, the sparkling wonder of it all, she'd mirror that at home. But it sounds like she is barely aware of her self, her soul, her desires, her possibilities. 

    A good weekly schedule for Autistic individuals can be incorporating a trip to the library, the art gallery the museum, and a few other similar exhibits. Every Thursday or Saturday. My son is 25 and I set schedules of things to learn. As he's gotten older, our holidays are incorporating one event or workshop involving living in the wild - foraging, fishing, birch tapping, gardening, camping (though he's put his foot down and it's only gallamping). He's moved out at intervals, mind he isn't autistic like me, but dyslexic and hyper sensory. However, the Autist can turn our hyper-sensory and hyper-focused selves into specialists. We can be incredibly reliable with the details of things and troubleshooting problems before they become problems - these are natural traits which companies need. We can be particular and precise, and when exposed to choices of lifestyles or exposed in general, can build a purposeful life. 

    The Autistic self can actually thrive in a solo space. Sometimes in a community building, but with our own breathing space without LEDs and interruptions and harsh scents or sounds. She might not have realised this. If you can book a yoga class, help her intentionally engage in mindfulness and the art of listening to the self. Most parents are beside themselves because their autistic child wants to be alone. Spending a few years incredibly focused on helping her grow into herself will afford you the long-term results you desire. 

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