Help / advice with Aspergers/hfa daughter








Not sure if this the right place to ask this.
My daughter was diagnosed with aspergers at 18, she is now almost 31.  We have never had any support with her since diagnosis.

She lives with us. As myself and my husband are getting older, and 2 of our other children have left home, with our youngest leaving home soon. Our thoughts have turned to downsizing in the next few years.

Our  hfa daughter seems to think i can fix anything /everything, she DOES however work part-time as a cleaner,  which is a fantastic achievement.

The issue i have is.... when we downsize, we want it to be just us ie myself and my husband. We have started to discuss this openly, so it doesn't come out of the blue.

She is very resistant to this and wants to come with us, our daughter that is due to move out has said we are unreasonable in not wanting to take our hfa daughter.


Our hfa daughter is always present, we cannot have a private conversation unless she is at work, or we go out for a walk or out in the car.  She does not help around the home, her room is a mess and only gets hoovered or cleaned when I do it.

Where can I get help to achieve her living independently of us? The situation has become very stressful for me. 

Parents
  • Hi, that must be really difficult situation. Have you looked at any supported living arrangements? I've never looked into it so can't advise, but one such place was shown on the Paddy McGuinness documentary about his 3 children with autism (which, by the way, I thought was really well made and really respectful of the children) and it looked like a really good kind of half-way house where parents could still be involved in their adult child's life, but the young adult could also learn some of the important skills needed for living alone and having their own freedoms. Just a thought, but others with more experience may be able to help more usefully.

Reply
  • Hi, that must be really difficult situation. Have you looked at any supported living arrangements? I've never looked into it so can't advise, but one such place was shown on the Paddy McGuinness documentary about his 3 children with autism (which, by the way, I thought was really well made and really respectful of the children) and it looked like a really good kind of half-way house where parents could still be involved in their adult child's life, but the young adult could also learn some of the important skills needed for living alone and having their own freedoms. Just a thought, but others with more experience may be able to help more usefully.

Children
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