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Selective Mutism

Kate Kestrel

Does anyone on here have Selective Mutism? My son has struggled with Selective Mutism (in educational settings) for about 16 years and it’s just struck me that we’ve never had a conversation with another person who has Selective Mutism. I’m new(ish) to this community so I just thought I’d ask if anyone else has gone through their whole education with Selective Mutism. And also if you have managed to overcome it - how did you do that? 
We’re basically just interested in hearing about other people’s experience of this. Thanks Sunflower

Parents

  • Hello, I used to have SM. I hope your son knows he is not alone, Selective Mutism is a common experience for many autistic people. SM affected me from year 8 to year 12- it was my aim to overcome it in sixth form. I managed to do this after I was off school because of major surgery. I think my SM was autistic shutdown instead, I know it may not feel achievable for your son right now but it is possible to overcome SM.

     I hope this helps.

  • in reply to Ausomely Autistic

    Thank you - that’s really good to know - I read your message to him and he asked me to thank you on his behalf. We’re both really happy for you that you managed to move on from it - and it’s encouraging for everyone who struggles with this to hear about stories like yours. Best wishes to you :) 

  • in reply to Kate Kestrel

    You are very welcome. I am glad I can help you and your son. Thank you, it is really helpful to find like minded (particularly autistic) people to share similar experiences.

    How old is your son? Would he like to use this forum? I would be happy to chat with him if feels comfortable.

  • in reply to Ausomely Autistic

    Many thanks.  I'll have a good browse.  It may be that I've visited these sites already as I keep circling around in desperation.  But it really helps me to sort the wheat from the chaff when others recommend sites.  

  • in reply to Jenny Butterfly

    I must have misunderstood. Another autistic literal interpretation. 

    You say you are looking for similar organisations, have you heard of Autistic UK?

    https://www.autisticuk.org/

    This organisation now offers peer support groups on Zoom every two weeks which sound really interesting.

    There is also another organisation based around autistic self advocacy:

    https://ndsa.uk/content/

    Just one more…..

    https://www.autangel.org.uk/about/

    This is another autistic led organisation it is based in Reading but many of the talks are delivered online, so regardless of location anyone can access them.

     I hope this helps you in your search for similar organisations.

Reply
  • in reply to Jenny Butterfly

    I must have misunderstood. Another autistic literal interpretation. 

    You say you are looking for similar organisations, have you heard of Autistic UK?

    https://www.autisticuk.org/

    This organisation now offers peer support groups on Zoom every two weeks which sound really interesting.

    There is also another organisation based around autistic self advocacy:

    https://ndsa.uk/content/

    Just one more…..

    https://www.autangel.org.uk/about/

    This is another autistic led organisation it is based in Reading but many of the talks are delivered online, so regardless of location anyone can access them.

     I hope this helps you in your search for similar organisations.

Children