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Post diagnosis assistance.

The Riddler

Can anyone recommend, or share experience of, effective assistance for post diagnosis?

I had been doing quite well, but found out last week that “quite well” was short hand for “unchallenged”! I went to a wedding with my partner last week, which has been on the cards for a few years. I tried to make it as easy as possible, visiting the venue a few months before etc. Annoyingly though I found that the rooms had been swapped around when I got there, but managed to get over this quite quickly. However, I felt completely detached during the evening event and ended up disappearing early and going to bed.

What really through me though is seeing myself in a video a few days later and now I’m feeling really down and vulnerable again. I need some advise on how to engage better and be able to get on with things.

Cheers.

Parents

  • I had to wait nearly two years after my diagnosis for my local NHS trust to set up a post autism support team which actively engages with individual typically for three one hour sessions over the webcam. However my situation was far my complicated so they extended it and they have been engaging with a year after the initial three sessions and it has helped. 

    What i have learned through the process is that it is reasonable for me not to attend or leave early from situations that make me uncomfortable and its okay to ask for help from others if i am uncomfortable and want to take part something but my limitations are cause internal conflict. 

    during post autism support i found that i get detached from social situations around non neurodivergent individuals and tend to burnout and become dissociated. i am attend virtual event to talk to other autistic individuals and its not as much as struggle navigating conversations.

    Hardest thing i had to learn was it was okay not to conform to others expectations , if i fell uncomfortable or i was forcing myself to something that i didn't want to do but felt like i had too. it okay to say no.   

        

  • in reply to Blue

    Hi Blue, thanks for your response. I guess the wedding situation was an extreme event, as it went on all day which was hard. I don’t think I’ve really recovered yet.

    I had my assessment a year ago and haven’t had any sort of acknowledgement at all from my GP. I’m left feeling they might not have even received the report.

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  • in reply to Blue

    Hi Blue, thanks for your response. I guess the wedding situation was an extreme event, as it went on all day which was hard. I don’t think I’ve really recovered yet.

    I had my assessment a year ago and haven’t had any sort of acknowledgement at all from my GP. I’m left feeling they might not have even received the report.

Children
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