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Disability geography - autism research

Hi everybody! I hope this thread won't scare you away and you will at least give this text a try Slight smile

My name is Eva, I'm 27 years old, diagnosed with AS in 2018 and I am currently a PhD student attending a Czech University (Masaryk University). Thanks to my diagnosis and my major I can focus on deeper understanding of living experences of people with AS. My field of focus is called "Disability geography", with my main focus being adult people with autism. In my surroundings I meet people who only care about autistic children, but not adults. I aim to at least acknowledge the existence of struggling adults and the situations, emotions and influences that these people (I and you) live everyday to the neurotypical society.

My master's thesis was focused on my own experience ("Disability geography: autoethnography of life with Asperger's syndrome"), however in my PhD studies I want to learn more about other people's experience. And to achieve it I must do the first step - which are interviews with autistic people (not necessary with AS, but it's preferable). And here comes a favour I would like to ask everybody who would read this thread. I have to learn of possibilities of ways of how to interview someone who is on the spectrum, so they would feel safe and comfortable. The thing is, I have my own preferences (for example being interviewed while going on a walk in an empty park), but I don't know what other means are considered safe and mostly comfortable by autistic people. So you would help me immensely if you could write me your own view on your perfect way of being interviewed. It can be really anything. From face-to-face (coffee shops, restaurants, taverns, park, city centre, your home, forest,...) to online forms (chat, e-mails, videocalls,...).

Every advice, comment, criticism or anything you would want to say or ask is truly appreciated.

Thank you very much! And even though you won't reply and only read, I hope you won't consider this a waste of your time Slight smile

Parents
  • My preference would always be the written word. I struggle to articulate verbally and especially in person.

    If it had to be in person, I would need a lot of prompting. You would get mostly monosyllabic yes/no responses and my immediate urge would be to escape.

  • Thank you very much! And would you prefer some kind of questionnaire (with a possibility of having subsequent questionnaires, since it's be probable that I'd need to ask additional questions), or rather chat/e-mail exchange? And also that means that you'd still prefer face-to-face communication rather than via phone/video calls?

Reply
  • Thank you very much! And would you prefer some kind of questionnaire (with a possibility of having subsequent questionnaires, since it's be probable that I'd need to ask additional questions), or rather chat/e-mail exchange? And also that means that you'd still prefer face-to-face communication rather than via phone/video calls?

Children
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