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A question on how you disclose your diagnosis to people

Oakling

One thing I’m trying to get to grips with is notifying people of my diagnosis where I feel it is helpful to either party. My diagnosis is a fairly recent one, but having gone 30 years without the words to describe what I’d been experiencing, I’m quite keen to talk to people about it. I feel that by recognising my diagnosis and notifying others of it, it allows me to be more forgiving of myself when I find things tough and hopefully gives people a heads up where extra patience might be needed.

One of the things I was guilty of early on was over sharing, but now I wonder if I’m too vague when telling people (I’m working on the basis of if they are interested, they’ll ask questions). 

So I suppose my question is this, if you tell people, how do you go about disclosing a diagnosis?

I’d be interested in reading your responses. 

Thanks

Parents

  • Great question and l am in a similar place to you with a very recent diagnosis. Unfortunately l can’t answer it in any capacity as l’ve been thinking about how to reveal this to friends. Any feed back would be very welcome. 

  • in reply to Don

    Thanks for your response.

    Some of the questions that I’ve been asking myself around disclosure recently are things like:

    How much do I want this person to know about my assessment?

    What do I think there is to gain from them knowing? E.g. Will it further our friendship/ understanding of one another?

    Is it important for them to know or is it more for myself? 

    But as I said before, this is all pretty new in terms of conversation so I don’t know how useful any of this is. 

    I guess it’s just a bit of a learning curve initially.

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  • in reply to Don

    Thanks for your response.

    Some of the questions that I’ve been asking myself around disclosure recently are things like:

    How much do I want this person to know about my assessment?

    What do I think there is to gain from them knowing? E.g. Will it further our friendship/ understanding of one another?

    Is it important for them to know or is it more for myself? 

    But as I said before, this is all pretty new in terms of conversation so I don’t know how useful any of this is. 

    I guess it’s just a bit of a learning curve initially.

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