Advice on going for late diagnosis

I'd like to ask if any of you have any advice. I know it's a long process, and looking at the forms the GP would have to submit, I see they ask "What is the patient hoping to get from diagnosis?" The truth is, I don't know. It's a few years since I realised I wasn't neurotypical but hey, I'm 61. I know it's not unusual to be diagnosed later in life but... I have hundreds of strategies in place which had me fooled, let alone other people.

I've been in counselling for a while and have been addressing 'emotional numbness' and it keeps coming to me that this might just be normal for me if I do have Autism. As I also have anxiety (again, coped until my fifties without diagnosis or medication) I can see this could related back to something else undiagnosed.

Mostly it's the feeling of 'being other' which I know people on here will understand. However I have lots of traits which would belie an ASD/C diagnosis. If I met the 5 year old me I would be referring her directly for assessment, but I'm obviously great at masking after over half a century!

Do you think I am right to think about seeking diagnosis? I feel there is a lot of effort going on beneath the surface which might be easier if I had some explanations... or should I just leave well alone as for the most part I am fine and very few people would suspect on meeting me that this is going on.

I am not in the least bit bothered about possibly having that label, in fact I might be more worried if I didn't have it. But do I NEED it?

Your thoughts would be very welcome. I have my last counselling session soon and so it may be the point to try something different and go for diagnosis. What do you think? I also fit the profile for ADHD and I don't know how to go about raising both as a possibility... 

Many thanks,

Gill

Parents
  • Hi Gill, Welcome to the forum. It is really complicated emotionally, isn't it.

    I think most people would say that having a diagnosis has helped them be more a peace with themselves. I'm guessing that you are not looking for it because you are needing reasonable adjustments in your workplace or for PIP. That would be the other reason I think it would help with.

    It's worth making a list of advantages and disadvantages for yourself to see whether it would help you. Of course, the waiting list is 2 years in my area, so you have plenty of time to change your mind, if you decide top go for it and then decide against it later.

Reply
  • Hi Gill, Welcome to the forum. It is really complicated emotionally, isn't it.

    I think most people would say that having a diagnosis has helped them be more a peace with themselves. I'm guessing that you are not looking for it because you are needing reasonable adjustments in your workplace or for PIP. That would be the other reason I think it would help with.

    It's worth making a list of advantages and disadvantages for yourself to see whether it would help you. Of course, the waiting list is 2 years in my area, so you have plenty of time to change your mind, if you decide top go for it and then decide against it later.

Children
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