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On a 2 years waiting list for a diagnosis.

Jembella

It's frustrating being 28 and only finding out now that I'm very likely to be autistic. It explains so many awkward moments in my life and why I'm hypersensitive to pretty much everything. I have childhood PTSD as well combined with grief from my stepdad dying from cancer in August 2020.

I have been long-term unemployed for a number of years and am trying to better myself in recovery but without the adequate support... It's truly difficult. I'm also on a two year waiting list for EMDR. 

Parents

  • Thanks for such an in-depth response. I did the aq10 nhs questionnaire and that's really what set the ball going as i answered all 10 with the answer of autism. I also have a care coordinator who pinpointed to me that she sees the signs of autism in me due to how i react.

    I cannot afford private help. I just don't have any savings nor am i rich really. My benefits keep me alive.

    The book sounds kind of useful. Its annoying that there is a book on ebay which is PTSD on the autism spectrum but it's £15. I can't seem to justify paying for it. The stupid thing is i can afford that but something in me just says that the sellers are being greedy. 

    39 is a late diagnosis so i don't feel alone there. I

    I'm sorry about your dad. 

    I hope one day i can find work where i feel understood, don't have to travel far as i don't have a car and feel safe. It seems unlikely though. 

Reply

  • Thanks for such an in-depth response. I did the aq10 nhs questionnaire and that's really what set the ball going as i answered all 10 with the answer of autism. I also have a care coordinator who pinpointed to me that she sees the signs of autism in me due to how i react.

    I cannot afford private help. I just don't have any savings nor am i rich really. My benefits keep me alive.

    The book sounds kind of useful. Its annoying that there is a book on ebay which is PTSD on the autism spectrum but it's £15. I can't seem to justify paying for it. The stupid thing is i can afford that but something in me just says that the sellers are being greedy. 

    39 is a late diagnosis so i don't feel alone there. I

    I'm sorry about your dad. 

    I hope one day i can find work where i feel understood, don't have to travel far as i don't have a car and feel safe. It seems unlikely though. 

Children
  • in reply to Jembella

    I understand not wanting to pay for the book.  To my husband's horror, I once waited months before buying something online because the price went up a few pence.  So don't feel bad about £15, my husband would understand you better than he understood me at that point, and I'm sure a lot of others would too! Slight smile

    Do you have access to a library?  That might be a way of finding some good resources, and if you can't find anything on the shelves, the library might be able to order a book in for you.  I do recommend the book I read, I've got 2 books on autism and that was the one I felt was the most useful for me.

    If you can find a job working from home (not all the rage yet but its getting there) that might help with your anxiety, it certainly helps me.  Even if you went for a job that was office based, if you can prove you can do it just as well from home, and have recommendations to back up home working, that could be a way for you.  Although granted you are probably going to need that diagnosis first, but its something to keep in mind.

    Best of luck