Struggle With Life On The Spectrum

Hi I'm Emily. I was diagnosed early on, now in my 20s and finding life on the spectrum extremely challenging in lots of different ways. I find it almost impossible to communicate with others other than writing things down. Verbally I'm almost mute. I have sensory issues especially with pain, I'm in pain 24-7, always feel like I'm ill and dying because of the pain but I've been to hospital oh so many times and tests says there's nothing wrong. A lot of the doctors I think believe I'm just taking the piss and want the attention, that isn't the case though, I sort of wish it was because the pain at times is unbearable to live with. I also have severe anxiety, hardly ever leave the house now too afraid. Of what? Basically everything. Everything out there makes incredibly anxious. I'm so anxious now I can't even go to see my therapist. Which is a shame because I feel like she helped me a lot. My mental state is appalling. God knows what's going on inside my head but it's not good. Not sure if it's AS or something else. I spend most of my time writing. I get lost in my writing, almost go into my own little world which allows me to escape the horrors of my own life. It is a nice thing to do but sometimes I worry I won't be able to get back again. Anybody else feel like this? I've been through so much in my 20 years on this rock, seen both my parents die which was horrible and I've lost everything in my life including my daughter. I'm back out of the hospital unit determined to make things better and happier this time but I don't see it working out. Hospital is like my home now and no matter what happens I always end up there again. But I'm going to keep writing and trying to flip things over for myself. Hoping being here will help as well, maybe might be able to improve my AS as well.

...Emily.

Parents
  • I'm really sorry to hear this.  You sound like a really strong person to have coped with all these things.  I don't have any answers, but one thing that helped me somewhat was blogging, which you might find helpful if you like writing.  There is a supportive community of mental health bloggers on Wordpress, and just writing things down might help clarify them for you and help you to find solutions.

  • Hi love. Thanks for your reply. Blogging is something I've considered but never actually done yet. How was your experience with blogging? What did you blog about. Sometimes I write about how I feel and what's on my mind and that can help me.

Reply Children
  • My experience is mostly positive.  I have blogged about different things over the years.  My current blog started as a mental health blog, but quickly became an autism blog when I began to feel that I was on the spectrum.  Lately it's mostly been about how I feel and how I cope with work etc. from an autistic point of view.  I've found it hard to build large numbers of followers, but I'm happy having a small number of followers who interact regularly.