Interesting Presentation and discussion from Sir Simon Baron-Cohen

https://www.youtube.com/watch?v=JwmV2fNXihM

Recorded just before Christmas, so not too out of date.  The presentation is about 30 minutes and the following Q&A about 1 hour.

It is generally very positive and is more on changing culture and attitudes towards ASD

Parents
  • I understand the worry of the autistic community regarding research but I hope this Spectrum 10K study does get the go ahead.  Yes the research has to be done in conjunction with the ASD community but I don't think it should be delayed any longer than needs be.  The more information we have, the better we can educate the wider population and change their attitude towards ASD and all types of neurodivergent people.

    Anyone see the program on Jay Blades learning to read at 53?  Dyslexia is another neurodivergent condition but people with dyslexia rarely achieved their full potential because the education system used to just think them stupid.  In reality, dyslexics have a very good imagination, high levels of creativity and are generally excellent at seeing the bigger picture (unlike us with ASD).

  • The issue is that once this research has been done, it can't be undone.  You are at the mercy of future decision making by politicians and health decision makers as yet unknown. In the US trans people were beginning to feel a lot safer, then Trump was elected and the trans community was suddenly in a very vulnerable position. I would also like to see such research done but global events do make people nervous about who might be in charge of their destiny in future decades and who might seize control of the resulting information. 

  • There is also the advantage of having such research conducted in one or more of the 'liberal democracies', where ethics thresholds exist, rather than in an autocracy, such as China, where ethics of any description are not evident at all.

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