Interesting Presentation and discussion from Sir Simon Baron-Cohen

https://www.youtube.com/watch?v=JwmV2fNXihM

Recorded just before Christmas, so not too out of date.  The presentation is about 30 minutes and the following Q&A about 1 hour.

It is generally very positive and is more on changing culture and attitudes towards ASD

Parents
  • I understand the worry of the autistic community regarding research but I hope this Spectrum 10K study does get the go ahead.  Yes the research has to be done in conjunction with the ASD community but I don't think it should be delayed any longer than needs be.  The more information we have, the better we can educate the wider population and change their attitude towards ASD and all types of neurodivergent people.

    Anyone see the program on Jay Blades learning to read at 53?  Dyslexia is another neurodivergent condition but people with dyslexia rarely achieved their full potential because the education system used to just think them stupid.  In reality, dyslexics have a very good imagination, high levels of creativity and are generally excellent at seeing the bigger picture (unlike us with ASD).

  • I looked at joining spectrum 10k. Then I read some of the arguments in the autistic community. Seems there's a lack of clarity about how the DNA samples they intended to collect will be used, both in terms of study and in the future. Perhaps for some people, those who are offended by the use of the term aspergers for instance, it brings up the notion of the *** purification attempts? I don't know either way, purely what I surmise. I was undecided on it all, so gave it a miss. All personal choice!

    I saw the Jay Blades programme. Found it fascinating. Especially the lady who used codes for various products. CH. BIS instead of chocolate biscuits for instance. Amazing coping mechanisms. And I thought how brave people are to admit they can't read and seek help. Especially in their 50's+. It must be a real shock in some families where it hasn't been mentioned before. I just thought: Good for you! Cracking programme.

Reply
  • I looked at joining spectrum 10k. Then I read some of the arguments in the autistic community. Seems there's a lack of clarity about how the DNA samples they intended to collect will be used, both in terms of study and in the future. Perhaps for some people, those who are offended by the use of the term aspergers for instance, it brings up the notion of the *** purification attempts? I don't know either way, purely what I surmise. I was undecided on it all, so gave it a miss. All personal choice!

    I saw the Jay Blades programme. Found it fascinating. Especially the lady who used codes for various products. CH. BIS instead of chocolate biscuits for instance. Amazing coping mechanisms. And I thought how brave people are to admit they can't read and seek help. Especially in their 50's+. It must be a real shock in some families where it hasn't been mentioned before. I just thought: Good for you! Cracking programme.

Children
  • Read Neurotribes by Steve Silberman - he goes in depth into the history of Autism and there is a big section on Karl Asperger and his involvement with the Nazi party.    He doesn't draw judgement but I suspect Asperger did get his hands dirty just to survive.  Very interesting book.