Role Models

Quite a lot has been written about people in the past who were high achievers who might have had Aspergers or HFA (eg Ioan James's book on this theme) or famous people around today who just don't admit to it. What we lack are people we can point to and say that person has aspergers, look what have they achieved.

I raise this because a huge amount of public relations and confidence building has developed around people in sport, in business, in art and in politics with dyslexia. Being able to do this helps people with dyslexia diagnoses to see a future for themselves. But it also helps persuade politicians, and decision makers and employers that people with HFA/Aspergers can do well and have a value for society.

It isn't that easy to do though. The Disability Equality Duty wanted universities to identify exemplars amongst teaching staff who could be role models for disabled students. It would say that you could not only study for a degree but teach degrees with a disability. It didn't catch on. It worked to an extent for deaf staff or dyslexic staff, but other conditions don't work so well with this idea.

The dilemma with HFA/Aspergers is that it doesn't work that well to say - look at me, look at what I achieved - because the manifestations are so varied, and the experiences so diverse and individual.

But to make a strong case for people on the spectrum we need something like this to happen.

Any ideas?

  • I wanted to add another observation to this. One book I have found useful in the workplace is Malcolm Johnson's Managing with Asperger Syndrome (2005 Jessica Kingsley publishers).

    I find the book helpful because it explores workplace politics and fitting in in depth, exactly the problems I've had to deal with through life. The book has certain limitations though. It doesn't clearly define asperger problems, and indeed the author seems to be at the very able end (or else playing down his own symptoms). Also it is too biographical and difficult to separate out the useful content.

    Now here's the dilemma. Malcolm Johnson's book helps with one of the most crucial areas for many adults - fitting in in the workplace. But if Malcolm is at the abler end, does that set him apart from many people with aspergers who are encountering very real barriers here?

    Professional investigators of autistic spectrum behaviour make a distinction between people with marked AS and associated problems, and those who are able. They seem to discard those of us who are able as not really having AS, or not worth studying.

    But to get back to what I have said about identifying high achievers as role models. Are these role models inevitably "able AS", and therefore outside the remit of autism researchers? Because if that's the case what hope have we of demonstrating success while having autism?

    If you can understand what I'm trying to say here, can you offer a resolution?