Diagnosis seems hard

Hello. This is going to be a little bit rant-y, but I also have some questions. Sorry it's so long. 

I'm 21 and I've suspected I'm autistic for a few years now, and only recently found the need to try and get formally diagnosed. I know many don't see it as necessary, but for me I like to know things for sure are facts. Because of this and also how I am currently struggling at university, I thought now (although a bit late) was my tipping point and that I should reach out because I feel like I need further support.

I contacted my university's disability support team, because I know they offer support with diagnosis of other conditions like ADHD. They say on the website that they cover the costs, which was a benefit for me as I am of course a student, and unemployed. But they told me they can't refer me for an assessment for autism, and referral has to be done through my GP. So question one: Is this true? I don't plan on contesting them on it as I feel there's no point, but I know that when it comes to children they can be referred through their school's disability team/SENCO, so is this not the case with universities? Even if they can refer me for other types of assessments?

Since that was taken away as an option, I have been looking into getting into contact with my GP to see if they can get me a referral. Though I have heard horror stories of dismissal of autism in women and adults by GPs, as well as awful waiting lists (I fear I might end up graduating or dropping out of university before a potential diagnosis is finished Sweat), I do feel as I said earlier that the opportunity for a diagnosis would benefit me personally. I cannot afford a private diagnosis by any means. This leads into my second question, which might be a stupid question, but I can't seem to find anything about it online. If referred through the NHS with a GP, are there costs for getting assessed? I only ask because my university discussing them covering costs for assessments led me to believe there are costs involved, even when not being diagnosed privately. I have seen a couple of numbers (£350, £600? Things like this) floating around that are seemingly significantly lower than private costs, but the information is strangely written and very hidden, so I still don't fully understand if there are costs involved or not.

Thank you for taking the time to read Slight smile

Parents
  • Hello, 

    I'm a lot older than you but had similar experience when I started Uni as a mature student. 

    Yes, DSA will give you an assessment of need for free but you have to have a formal diagnosis for that. Depending on where you live you can self refer for an autism diagnosis so have a look at your area and see if you can. Yes there is a waiting list but if you can be flexible with last minute appointments you can be seen sooner.

    Also, if you have anxiety you can see your GP and ask for a supporting letter for Disability services at Uni, they will refer you for an assessment of need from DSA based on that. It is quite similar to the support they offer for Autism anyway and the process can be started atriaght away.

    Good luck in your degree.. :) 

Reply
  • Hello, 

    I'm a lot older than you but had similar experience when I started Uni as a mature student. 

    Yes, DSA will give you an assessment of need for free but you have to have a formal diagnosis for that. Depending on where you live you can self refer for an autism diagnosis so have a look at your area and see if you can. Yes there is a waiting list but if you can be flexible with last minute appointments you can be seen sooner.

    Also, if you have anxiety you can see your GP and ask for a supporting letter for Disability services at Uni, they will refer you for an assessment of need from DSA based on that. It is quite similar to the support they offer for Autism anyway and the process can be started atriaght away.

    Good luck in your degree.. :) 

Children
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