Diagnosis seems hard

Hello. This is going to be a little bit rant-y, but I also have some questions. Sorry it's so long. 

I'm 21 and I've suspected I'm autistic for a few years now, and only recently found the need to try and get formally diagnosed. I know many don't see it as necessary, but for me I like to know things for sure are facts. Because of this and also how I am currently struggling at university, I thought now (although a bit late) was my tipping point and that I should reach out because I feel like I need further support.

I contacted my university's disability support team, because I know they offer support with diagnosis of other conditions like ADHD. They say on the website that they cover the costs, which was a benefit for me as I am of course a student, and unemployed. But they told me they can't refer me for an assessment for autism, and referral has to be done through my GP. So question one: Is this true? I don't plan on contesting them on it as I feel there's no point, but I know that when it comes to children they can be referred through their school's disability team/SENCO, so is this not the case with universities? Even if they can refer me for other types of assessments?

Since that was taken away as an option, I have been looking into getting into contact with my GP to see if they can get me a referral. Though I have heard horror stories of dismissal of autism in women and adults by GPs, as well as awful waiting lists (I fear I might end up graduating or dropping out of university before a potential diagnosis is finished Sweat), I do feel as I said earlier that the opportunity for a diagnosis would benefit me personally. I cannot afford a private diagnosis by any means. This leads into my second question, which might be a stupid question, but I can't seem to find anything about it online. If referred through the NHS with a GP, are there costs for getting assessed? I only ask because my university discussing them covering costs for assessments led me to believe there are costs involved, even when not being diagnosed privately. I have seen a couple of numbers (£350, £600? Things like this) floating around that are seemingly significantly lower than private costs, but the information is strangely written and very hidden, so I still don't fully understand if there are costs involved or not.

Thank you for taking the time to read Slight smile

Parents
  • It sounds to me that the university team will do it  but they just need your GP referral first. Probably because otherwise they could end up assessing most of the student population, most of whom wouldn't need one. And their resources won't be infinite. 

    Yes, NHS waiting lists are hideous and might never kick in before your graduation. But see your GP and ask for a copy of their referral letter.

    Then, give that to student services, who can then short cut the system and get you an assessment. 

    If it's any comfort, I have  colleague who didn't know until she did a university course as a mature student and the Univetsity picked up on it. She was assessed by their in-house team

  • Maybe so, but if this is the case they definitely should have made it clearer lol 

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