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Have any adults managed to get DLA?

stranger

This is really starting to piss me off now:

I receive low rate care and mobility for sight imapirment. Despite me having Autism and associated sensory issues, they have decided that these should not be an issue. Part of their argument seems to be "you were born with it, so you should have adapted now". Except, that's not true. I was not born with hyperacusis, which they have decided I do not need help with. Er, it causes meltdowns. They claim they can't take things into account which may happen. Going by that logic, I shouldn't be able to claim DLA on the basis on not being to cook a meal because I may burn myself.

It seems as though they've ignored everything that I've written on my forms. They also used a medical report which was written in May last year - it's irrelevant now.

  • Hi, I'm new to this place and really looking for a bit of advice.

    I have a 12 year old daughter who has been quite a handful for the last 6 years.  She has had sensory issues where she would go into tantrums because her socks "felt funny" or her clothes were "too cold".  As well as that, I have gone through so much clothes to buy for her as one day it will feel fine and the next day "it doesn't fit, it's sore".  She also has a problem with being around people who are eating and ends up eating alone at school because she cannot abide kids squashing their sandwiches or opening their mouths when eating.  I assumed she was just a picky fussy child but now feel her issues are getting harder to deal with - most people say to me "its just her age".  What people dont realise is that with her there is NO REASONING!  On top of this, she is very smart for her age and uses words and expressions that none of her friends understand, ie. she's too smart for her own good!  She hates being touched so I cannot get a hug from her and if I or anyone cough or sneeze near her she goes ballistic.  Is this normal behaviour?  I feel I want to have her assessed and I have been open and honest to her and said this.  She flat refuses to go to the doctors with me.  What can I do?  Her tantrums and idiosyncrasies are driving my partner and me apart.  I'm scared that when she becoming a teenager we will have an out of control child living with us!!  Any advice would be appreciated.  My sister's son has recently had a diagnosis of autism and thinks I should try and get my daughter some help but I cant see how to if my daughter refuses to co-operate.

  • Pipping hell and Diagnosed Long-term Autism (D.L.A) .. lol

    Seriously, same story across the autism board, the DLA ignored my claim, I think it is because I wrote and gave them the information myself at first,, then I appealed via the council advice support worker and told them,, good ! If anyone is looking for me, I will be rotting in the house, if I get called to go to a work interview for the DWP, I will just tell them I have no support via DLA, although the doctors medically say I am need support.

    The strange thing here is the governments says to us all do X,Y and Z and does not provide the support nor resources to carry out there policy. The Government talkith and giveth no away. Anyway the psychriast and psychologist wrote to them with a copy of the care plan and basically told them to get real !

    I have learned to stop trying to explain my condition in full to a machine proxy run by souless demons,, just get the doctors to write to them with your care plan.

  • I've noticed that PIP does seem to be more relevant.

  • I receive lower mobility and know it won't change. it's the care that should be higher. They seem to have ignored the fact that one issue I have, (which I beleive isn't unusual amongst people n the spectrum) is my habit of getting so absorbed into things that I forget to do things, such as eat, drink, shower and go to bed.

    I don't have a proper diagnosis (my letters say I may have it; but any letters from GP have said I have it - it's pretty obvious I have it; but no-one has bothered to diagnose me properly) which hasn't helped either. I know people claim it's the needs and not the diagnosis; but it seems as though you need a diagosis to be taken seriously.

  • I get low mobility because I usually need someone to go places with me.  The reason I applied was for help with keeping a vehicle as I cannot use public transport but that does not come into their criteria. All the questions seem to assume that everything you need is in walking distance for people so they only ask about walking.  There is nothing I need within the distance I can walk, it is just houses and more houses.

    You will probably laugh at my lack of cynicism here, but I am hoping PIP will recognise that people cannot walk everywhere even without a disability and ask other questions about transport.

    They only look through certain windows and if your difficulties cannot be seen through those windows then they don't see it at all.