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What to do after a diagnosis is NOT confirmed after an assessment?

NAS39237

Hi,

I had my Autism assessment today after 3 years of waiting and the assessor believed my situation did not line up with the Autism Spectrum. His reasoning seemed to be that it is because I felt that it did not affect my life at an early age but certain debilitation have become more problematic in adulthood.  He mentioned the vague term of me having a personality disorder - more likely Anxiety. Yet, despite my obvious disappointment I don't know what to make of it - I've a list of Personality Disorders and common traits within them and nothing seems to jump out at a connection.

The problem is I feel that the debilitation I have are not just apparent when I am anxious. A lot of it is social based but even when I am with a friend I still cannot make eye contact among many other sensory and personality conflicts - I feel as if I simply don't qualify as an adult nor can handle any life skills expected as an adult.

I could go on further but the simple point is I am stuck, do I get another referral which I would have to pay for/cannot afford or look further into this vague term of personality disorder and go from there? I feel the debilitation getting worse, struggling to manage my work by the second. I was hoping to get through this get assistance but now I fee l am left  with nothing... & I don't know what to do...

Parents

  • My life became increasingly difficult the older I got, so I don't know if I agree with what they have said to you. They expect us all to be bullied, and indeed I was, but I'm not sure it's fair to assume every autistic person will be singled out or excluded. Other kids CAN be accepting of other children, even the stranger kids. Kids don't have much else to struggle with if they have a loving family either, so we are a bit more limited in childhood but as adults we usually take on a lot more responsibilities and more is expected of us. From my mid-teens onwards I struggled more and more. I couldn't rely on my natural intelligence and I needed to focus and also navigate more social situations to succeed, and sadly I couldn't. 

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  • My life became increasingly difficult the older I got, so I don't know if I agree with what they have said to you. They expect us all to be bullied, and indeed I was, but I'm not sure it's fair to assume every autistic person will be singled out or excluded. Other kids CAN be accepting of other children, even the stranger kids. Kids don't have much else to struggle with if they have a loving family either, so we are a bit more limited in childhood but as adults we usually take on a lot more responsibilities and more is expected of us. From my mid-teens onwards I struggled more and more. I couldn't rely on my natural intelligence and I needed to focus and also navigate more social situations to succeed, and sadly I couldn't. 

Children
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