Hello all,
TL:DR I fear worse treatment from the NHS and their staff if I disclose my diagnosis to my GP and it goes on my records. The NHS sees 'risk first' and seems to go for the easier option in 'managing risk' eg by using inappropriate medication and a restraint approach. Sobering read: www.autism.org.uk/.../transforming-care
I am an adult female in full-time work and live independently. I do not have learning disabilities (as far as I know). I am on the NHS waiting list for adult autism assessment/diagnosis. I have obtained a private assessment also (for speed and comparison). I have no issue with the diagnosis/assessment of me being on the autistic spectrum with ADHD and anxiety. I have not divulged the assessment findings to my GP as I feared it would go on my NHS records. I have some reservations to this diagnosis being more widely shared within the NHS in case I have to go to hospital again. Previous in-patient stays were extremely stressful for me with open comments from nursing staff that I was 'difficult' and 'upset other patients'. I found this upsetting and humiliating but I knew it was borne from my own anxiety - new place, unfamiliar surroundings, beeps, noises, no explanations, exasperation in staff tone towards me- you may be familiar with this. I was scared most of the time in hospital.
I welcome thoughts and experiences but please do not pass judgement on my accessing diagnosis through a private route. Does anyone have any positive reassurance to offer?
