Help for my daughter

Hi I'm looking for help for my daughter who has asd. She's 24 but still very childlike and was a sweet girl, always kind and friendly. Over the last couple of years there's been a lot of stress in the family, at the time my daughter seemed to cope well but in the last couple of months she's changed and now I'm very worried. She told me she hears voices. There horrible to her apparently. She has also become very violent. She tried to strangle her sister and she screams and shouts if you go into her room or into her space. And the last couple of days she's not recognizing me or the family or where she is. She thinks she's in a prison and we're her guards. And she says that demons are after her. Is all this part of her autism? How can I help her through this? I'm just really worried and don't know what to do. Please help.

  • She mentioned she's on a waiting list. I think any mum would be beside themselves. The daughter is autistic and autism and schizophrenia are related. It's good she posted here. People are easily gaslit nto believing the their perceptions and imaginations are not worth-while. It cannot hurt to get affirmation that this is a matter of grave consequence.

  • Hello

    Are you having a laugh? If you having a kid with such behaviour, you do not type on forum…

  • Oh wow you do need immediate assistance. I would contact a clinical psychologist asap (private if you cannot get help from the NHS) and get some kind of anxiety medication to start which hopefully she'll only need temporarily. 

    Knowing so little about her overall health and other hyper sensory issues, it sounds as if she's either been holding a great deal of stress in and now it's manifesting in ways which confuse reality and fantasy or something genetic or...

    If you're religious there's possible another side to this. When children are raised in an environment where they learn pieces of gigantic concepts (angels, demons, miracles, G-d), or if they have a bent toward Physics or Philosophy, without proper knowledge and understanding, the broken bits of knowledge can become incredibly warped and take on a life of their own. A demon is an entity created by myths and stories and religions which embodies chaos and sadism. So, 2 things, either there are these darker systems or forces (like the force of gravity) of chaos and sadism in very small seemingly inconsequential and 'invisible' things happening from others around her and her heightened senses (emotional/psychological) and most likely heightened ability to use her imagination is creating a waking dream (a picture is worth a 1000 words). OR she desperately needs to become much more grounded in her understanding of whatever you may ascribe to. If it's christianity, she should read the Bible itself and work out how the information has been skewed. Same with any other "Manual". 

    Most importantly she needs to feel loved and not terrorised. Protected and not abandoned. It may be as simple as re-wiring her perspectives on what 'demons' are and how much 'power' they have. It could be something more. But some sort of medication to help her feel less terrorised and able to focus until she can redesign her perspectives can be temporarily useful. 

  • Hi, 

    Sorry to hear this is happening. 

    I'm a final year student paramedic, so helping those experiencing a mental health crisis is something I have a fair amount of experience in. Although please note I don't diagnose, we are trained to give a clinical impression, and I haven't met Emily. 

    What you have described is akin to schizophrenia. This form of mental health disorder frequently shows for the first time during the patient's twenties, with a gradual onset/worsening. Whilst this condition can often seem big and scary, try not to let it weigh you down. Medication for schizophrenia can make the condition almost non-existent. Whilst any mental health journey has its own challenges, it's important to take each day as it comes and to not lose hope.

    Mental health referrals can unfortunately often take months. However, it sounds like your daughter is currently experiencing a mental health crisis, this is an acute episode of worsened symptoms, with possible psychosis. This presents its own dilemma. 

    A mental health crisis, like any other emergency, justifies a 999 call. An ambulance with people like me would visit you as soon as demands enable us to. We would gather a history from yourself and speak to your daughter in an objective, non-judgmental way. As this is a new onset, they would likely recommend taking her to the local A&E department. This would enable her to be seen by a psychiatrist and begin her journey to regaining control. 

    However, it is recognised that A&E isn't the perfect environment for MH patients, but they are getting better. They are introducing (many already have) private rooms for MH patients, and are allowed a carer, like yourself with them. I'd recommend bringing something that she usually likes to do to spend time like a tablet or book as this can take a little while. 

    She is probably very scared, as to her, what she believes is happening is as real as night and day. Try to work to her needs, but don't beat yourself up, this can be challenging. Try reassuring her without rejecting what she believes to be happening. 

    Remember this is a challenging situation and your own well-being is very important too. Always seek help for yourself if you need it. Samaritans are very good, for everyone in this situation. 

  • I have a 14 year old who is extremely sensitive and has been locking herself in her room, getting mad when we talk to her about anything and she has been worse since some extra stress happened. It does sound like possibly it's all a bit much does your daughter have many friends as mine has none but really think they would help her alot. 

  • Yes I've tried contacting the mental health team and they've put her on a waiting list but I've heard no more.

  • It sounds like she is having something quite serious going on separate to her autism. Have you phoned anyone for professional help? Eg. GP, 111, mental health team?