Help

Hello @NAS75396

Thank you for sharing this with the community. I'm really sorry to hear about some of the difficulties that you and your family have faced. 

You may find the following page from our website useful which gives some general information regarding post diagnosis support:

https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/post-diagnosis-support 

Individuals on the spectrum can often display behaviour that may be challenging. There will generally be a reason for this and it is important to try and understand the trigger for the behaviour when developing strategies. You may like to have a look at the following link for more information on behaviour and strategies: 

https://www.autism.org.uk/advice-and-guidance/topics/behaviour 

 You may be interested in seeking some professional support regarding the behaviour. You can search for professionals in your area we are aware of on the Autism Services Directory: 

https://www.autism.org.uk/directory 

 You might also like to take a look at The Challenging Behaviour Foundation website for further information and advice: 

 https://www.challengingbehaviour.org.uk.  They also have an information and support service which you can contact by phone or email – details can be found here: https://www.challengingbehaviour.org.uk/for-family-carers/family-support-service/ 

 I hope this helps,

ChloeMod

There's a whole community of autistic adults on this site who can help! There are amazing links as well which can provide information about services.

I'd like to help, but I don't want to overstep. There's such little information in what I'm reading, so without assuming I'm just going to try and see if I can make guesses to help! Being a mum, I know how overwhelming it can be. 

You may already have created an Autistic-Friendly environment. Once you do, you may begin to notice when in an outside situation which is difficult for him to cope in. 

If this is so, your home might look like this: 

Textile: All of his clothes are 100% natural fibres: wool, cotton, or tree based fabric. No blends, no polys.

Cleaning products: Detergents, soaps, countertop sprays and liquids are all either Unscented or like Dr. Bronner’s, have natural essential oils. You may have bleach (which you’d use away from him anyway) and maybe dishwasher tables which can dry in the dishwasher, where he won’t breathe in the scents. 

All candles are beeswax or soy (not petroleum based) with pure essential oils & rarely used.

You don’t have plug-ins or incense.

You’ve changed all the lightbulbs he’s exposed to from LED to incandescent or halogen. Saving maybe a Salt lamp with an LED because the salt breaks up the light properly.

There’s no ongoing stream of noise around the house. Sometimes you listen quietly to music with the door closed, or your partner watches TV with headphones on. It’s silent for the most part. Appliances aren’t buzzing as the socket is turned off when not in use. Maybe there’s outside traffic, but that’s more noisy than anything inside. 

The walls are rather boring in his room. Perhaps you take more liberty with your space. But the spaces he’s exposed to are quite minimal. Maybe fun colours, but there’s not clutter everywhere. 

__________

I once heard a neurobiologist say “All Senses are Tools for Calculation”. And when thinking of pre-historic humans, this makes sense. We need these tools to identify what is safe and what to be mindful or even fearful of (volcanoes in neighbouring islands, bears, seasons) so we can prepare properly. Senses are meant to identify matters of safety. When we feel unsafe, our fight or flight or freeze mode will kick in. Your sons defaults to flight is sounds like.

When we have difficulty Dulling our Senses, this current modern civilisation is unbearable. 

I can get a little more in-depth with this information if you wish? Do you have noise cancelling headphones for him? Sunglasses for dealing with lights. 

The next thing to be mindful of isn't just our physiological senses, but also emotional. These will be hyper-sensory as well. 

He runs to escape so thats why we stay in. I dont no what you mean about what information we have on the autistic brain. We know about it but dont know where to het help

Can you help us understand what you have done to help him with daily life? Adjustments to environment. If he likes to run is this a need to explore or escape. 

What information do you have on the autistic brain and how your son perceives and experiences the world? 

As for school, it can be maddening -environmental sensory overload including emotional overload due to continually being misunderstood or misrepresented, a lack of inclusion and lack of ability to connect.