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Good news- Spectrum 10k study has been postponed

Ausomely Autistic

I know there have been some concerns about Spectrum 10k shared on this forum. There is a now a positive outcome thanks the passion of autistic advocates, parents and the Stop Spectrum 10k petition. The Spectrum 10k study has been postponed and will include discussion with autistic people. This shows the strength of the autistic community and the value of innate autistic traits such as passion, hyper focus and determination.

Link to victory message on the petition:

https://www.change.org/p/university-of-cambridge-stop-spectrum-10k/u/29588536

Parents

  • What this says to me, above all else, is that the spectrum model of autism  is more problematic than useful.There are very differing needs between those against such research, and those at  the other end of  the spectrum. Then there's the vast largely overlooked 'middle' to which I belong . Is there really much difference  between non autistic people dominating research into autism and the highly capable end of autistic spectrum seeking to do the same, with only  a passing nod to those less able?

    If you're doing well why would you want your 'gifts' taken away? You quite understandably want to keep them. You also quite naturally want to break down any barriers that prevent you making the best use of them.

    If you're the parent of a child/adult at the other end of the spectrum you naturally want life to be much better for your son or daughter. The kind of things that would be beneficial for the highly capable end of the spectrum, are next to useless in improving the lives of those at the opposite end. 

    IMO there needs to be a radical rethink re the 'spectrum' approach/ model  .

Reply

  • What this says to me, above all else, is that the spectrum model of autism  is more problematic than useful.There are very differing needs between those against such research, and those at  the other end of  the spectrum. Then there's the vast largely overlooked 'middle' to which I belong . Is there really much difference  between non autistic people dominating research into autism and the highly capable end of autistic spectrum seeking to do the same, with only  a passing nod to those less able?

    If you're doing well why would you want your 'gifts' taken away? You quite understandably want to keep them. You also quite naturally want to break down any barriers that prevent you making the best use of them.

    If you're the parent of a child/adult at the other end of the spectrum you naturally want life to be much better for your son or daughter. The kind of things that would be beneficial for the highly capable end of the spectrum, are next to useless in improving the lives of those at the opposite end. 

    IMO there needs to be a radical rethink re the 'spectrum' approach/ model  .

Children