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Good news- Spectrum 10k study has been postponed

Ausomely Autistic

I know there have been some concerns about Spectrum 10k shared on this forum. There is a now a positive outcome thanks the passion of autistic advocates, parents and the Stop Spectrum 10k petition. The Spectrum 10k study has been postponed and will include discussion with autistic people. This shows the strength of the autistic community and the value of innate autistic traits such as passion, hyper focus and determination.

Link to victory message on the petition:

https://www.change.org/p/university-of-cambridge-stop-spectrum-10k/u/29588536

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  • in reply to Deleted User

    And apologies, I meant to come back to this and explain why I feel the way I do about the words "self appointed Twitter elite".  

    I don't use Twitter so can't comment on that aspect, but many of those who oppose this research are well read, well written (blogs and websites), some are published and some are researchers too, so to me they don't seem to be any more "self appointed" than the researchers themselves (who, being non autistic, might have found it somewhat easier to take the conventional routes through their lives and careers).  They make some very good points here, which I believe anyone wishing to be involved should take into account, and I'm very grateful that they're making them. 

    I also don't feel dictated to at all, which has been the uncomfortable feeling I've had during my family's experience with mental health services.  And my purpose in highlighting the issues is likewise not to dictate, more to inform, especially since S B-C's views are often taken as gospel and promoted via his presence on the NAS as a vice president - his views are basically given priority (likewise I'm not clear why Sophie Wessex is a patron but that's a separate matter).