Good news- Spectrum 10k study has been postponed

I know there have been some concerns about Spectrum 10k shared on this forum. There is a now a positive outcome thanks the passion of autistic advocates, parents and the Stop Spectrum 10k petition. The Spectrum 10k study has been postponed and will include discussion with autistic people. This shows the strength of the autistic community and the value of innate autistic traits such as passion, hyper focus and determination.

Link to victory message on the petition:

https://www.change.org/p/university-of-cambridge-stop-spectrum-10k/u/29588536

Parents
  • I only just learned about the study from this post, but... and I know this will be controversial, but isn't greater understanding of autism a good thing for us? I understand the fears about eugenics, but so far as I know there isn't any technology sophisticated enough to choose what genes to "turn off" before birth. The closest I'm aware of is something called CRISPR, but from documentaries I've seen on the subject it cannot be used to make any kind of genetic selections about something like autism, or any form of learning disability or personality trait.

    I'm happy to be corrected by anyone more educated than me on this, but as someone with a lot of issues associated with my diagnosis of autism spectrum I only feel disappointed. 

Reply
  • I only just learned about the study from this post, but... and I know this will be controversial, but isn't greater understanding of autism a good thing for us? I understand the fears about eugenics, but so far as I know there isn't any technology sophisticated enough to choose what genes to "turn off" before birth. The closest I'm aware of is something called CRISPR, but from documentaries I've seen on the subject it cannot be used to make any kind of genetic selections about something like autism, or any form of learning disability or personality trait.

    I'm happy to be corrected by anyone more educated than me on this, but as someone with a lot of issues associated with my diagnosis of autism spectrum I only feel disappointed. 

Children