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Reality Dawning

Hellbell

It’s just starting to dawn on me how poor support for adults really is. Since being dumped by my mental health coordinator for having the gall to say I needed a months break and didn’t want to pursue trauma therapy as it was making me worse, and trying to explain my alexithymia makes it difficult to process and that I’d been masking trying to meet what’s expected of me, my head has been swimming. So I don’t fit the NT therapies so you dump me knowing I have rejection issues.

I want to complain but with support of an advocate, but guess what! I can’t find anyone as I have to pay, or they don’t do autism, or none in my area, bounce me from one service to another. Even the NAS can’t help me…it’s like being cast out sea with no frikking paddle like you don’t exist so you start to slip between the cracks. This system is broken and does us a disservice. Finding out so late in life but nothing there to support you and have mental health treat you like someone they don’t want to deal with and the main Autism charity has nothing to offer us but a few leaflets? No one to call and get advocate to help you due executive function problems and it being overwhelming?

I despair that I’m not the only one too. 

  • Northern Ireland seems to escape the worst of Britain's problems, and - for that - I am grateful.

    I have a Mental Health Key Worker. She lets me discuss issues arising. Tomorrow, I need to outreach about additional stressers.

  • I'm sorry you feel this way, it must be despairing. I have contacted my mental health nhs team today as things have been getting too much.  I've used them before and they were great but I feel this time I'm going to have difficulty explaining myself.

    It's hard being diagnosed any time I suppose but most of the help out there seems to be for children,  parents or carers. I do feel that "high functioning" adults are left behind. Just because someone is outwardly functioning ok, that doesn't show what's going on behind the scenes. I wanted to join a peer support group but there don't seem to be any near by. Maybe I'll have to start my own.

  • I have to feel, in terms of advocacy for the needs of mental competent autistic adults, NAS isn’t making it a priority. The logical solution is self advocacy but in order to do that as an interest group independent autistic adults need to self organise and form a coordinated group. Either a formal group like a charity or an informal group working under the NAS umbrella (if they would go along with such a thing)