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My 4 year old is not diagnosed yet

NAS74908

Hi all, I am new to this.  My son has been showing signs of ASD for a couple of years now, and I finally have a telephone consultation in a week to start the process of diagnosis.  I am really struggling with some of his behaviour.  He is partially verbal but doesn't communicate. I am finding it so hard as he also starts school  next week and I am very worried for me.  I am not worried about him having ASD at all, What worries me is that I am unable to accommodate his needs as I cannot communicate with him and nor can he with me very well.  Is there anyone else out there with the same problem.  That can maybe offer some help in the meantime?

Thank you 

Parents

  • Hi

    My daughter is 13 and not diagnosed as autistic due to the long waiting lists although it is very clear. She has always struggled with communication and understanding, the professionals have always said it was shyness and that she was a non compliant child (naughty). Now we are looking at possible selective mutism which is an anxiety based disorder. This is where they freeze and cannot talk it’s not that they choose not to they just physically can’t.  She can go days and days without talking. I have to communicate for her when we are out of the house. For instance her name and date of birth which she knows but she just can’t answer.  She also struggles to understand unless we use short clear communication. We have introduced picture cards for her and they seem to be helping. She can point to these to tell us she is hungry, tired, wanting to play, hot, cold etc. Sometimes I will use the cards to communicate with her and she will nod, shake her head or point. Sometimes this helps to remove the pressure of questions which she hates. It’s very difficult and I sometimes too feel like I am not accommodating her needs but this is also a learning curve for us as parents. It’s hard. Don’t beat yourself up. I bet your doing an amazing job. Not sure if this will help your son as all children are different. 

Reply

  • Hi

    My daughter is 13 and not diagnosed as autistic due to the long waiting lists although it is very clear. She has always struggled with communication and understanding, the professionals have always said it was shyness and that she was a non compliant child (naughty). Now we are looking at possible selective mutism which is an anxiety based disorder. This is where they freeze and cannot talk it’s not that they choose not to they just physically can’t.  She can go days and days without talking. I have to communicate for her when we are out of the house. For instance her name and date of birth which she knows but she just can’t answer.  She also struggles to understand unless we use short clear communication. We have introduced picture cards for her and they seem to be helping. She can point to these to tell us she is hungry, tired, wanting to play, hot, cold etc. Sometimes I will use the cards to communicate with her and she will nod, shake her head or point. Sometimes this helps to remove the pressure of questions which she hates. It’s very difficult and I sometimes too feel like I am not accommodating her needs but this is also a learning curve for us as parents. It’s hard. Don’t beat yourself up. I bet your doing an amazing job. Not sure if this will help your son as all children are different. 

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