It's Not Cool To be Autistic

I've heard over the years people who claim to be autistic saying that they like their autism, and that there's a certain coolness about being an "Aspie."  It holds advantages over being neurotypical.  They wouldn't swap.  It's almost a boast.  I've never understood this. 

I'm on the spectrum and diagnosed as high-functioning.  I hold down a decent job, and have done so for many years.  However, I've seen my colleagues be promoted past me and had to accept the situation because of my social interaction and communication challenges.  Work has never been easy, and every day has been a challenge, and I long for retirement, when I won't have to interact with people.  When I reflect back on my life and recall the missed opportunities in terms of personal relationships, and friendships, the unhappiness at attending what should be fun social events, the meltdowns, the stimming; how can anyone want this situation?

I've now recently learnt that my grandson is autistic, not high-functioning and probably non-verbal.  It will be a challenge for him for the rest of his life, and for those who care for him.  I also now have a further issue to deal with in that I can't help thinking that I'm possibly the reason he's autistic.

In no way, shape or form is it, or could it ever be cool.  

Parents
  • I miss out on just as much as you've mentioned, the reason I prefer to be autistic is I have good things in my life that I like that I wouldn't have if I were not autistic. I don't look at autism as nothing but a list of "deficits".

    I look at what's good about my life and what seems not so good. I look at what's good about a nonautistic person's life, and what's not good about a nonautistic person's life.

    Then out of the two I would rather have the difficulties of my autistic life. If I were not autistic I would probably be having the financial struggles I see others having, I would probably be scared to appear different like most NTs in crowds, I wouldn't be as diligent in my interests.

    I see just as much to be grateful for.

Reply
  • I miss out on just as much as you've mentioned, the reason I prefer to be autistic is I have good things in my life that I like that I wouldn't have if I were not autistic. I don't look at autism as nothing but a list of "deficits".

    I look at what's good about my life and what seems not so good. I look at what's good about a nonautistic person's life, and what's not good about a nonautistic person's life.

    Then out of the two I would rather have the difficulties of my autistic life. If I were not autistic I would probably be having the financial struggles I see others having, I would probably be scared to appear different like most NTs in crowds, I wouldn't be as diligent in my interests.

    I see just as much to be grateful for.

Children
  • But when I see my daughter trying to communicate to her son, and there's just no reaction, no bond.

    I swear you could leave him with complete strangers and he wouldn't be bothered.

    He gets so infuriated because he can't communicate.

    Thankfully not my grandson but; skull caps, ear defenders.

    Surely you can't favour that over not being autistic? You'll probably say that you're referring to high functioning only, but the problem is it all gets lumped.

    Even with high functioning, the daily challenge of buses, supermarkets, shops, works people visiting the house etc. The list is endless. No, not for me.....but sadly it is.

    I'd actually challenge anyone who thinks autism is a cool or trendy badge to wear, something to bring up as an interesting topic for discussion; something to be proud of.....go get a second opinion on your original diagnosis.