• Replies 16 replies
  • Subscribers 86 subscribers
  • Views 3347 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Getting A Late Diagnosis

VulVoken

I'm having a problem with my GP, he won't refer me for an autism assessment because in his eyes ( and the second opinion doctor ) people my age are rarely diagnosed because it's always caught in childhood.
I know that's not true, more and more adults are being diagnosed.

I had been seeing a psychiatrist a few years ago and he leaned on thinking I have BPD ( I looked at his Twitter page, he seems like posting about BPD)


I researched BPD and though I did understand it, it didn't match what I go through or how I feel.
I've been called autistic since school, though I never knew what it was.
I was getting called the same thing when I joined college, so I started looking it up and they actually seem to be right. Not all of those people were being cruel, some said they had autism themselves or had family who did.


The GP won't listen, and I'm going to have a huge problem trying to pay for a private assessment.

What the hell should I do?

Parents

  • Hello 

    Sorry to hear you are in this situation. GPs can be a tricky bunch. Can I suggest contacting your local CCG?

    Ask to speak to the project manager for adult mental health pathways/adult neurodiversity. Ask them to confirm the steps/criteria GPs should be following/applying in your area and explain that your GPs are in effect locking you out from accessing help.

    Here are the NICE guidelines for adult ASD assessment: https://www.nice.org.uk/guidance/cg142/chapter/Recommendations#identification-and-assessment-2

    Have a read through and try to evidence where your GP is not meeting these guidelines. If you can (it will be hard, I know) rise above the emotions and use the evidence to embarrass the GP/CCG.

    The tide on accessing assessments for neurodiverse adults is turning against old-fashioned attitudes but we need to stick together and persist to make sure things continue to improve for us and others.

    You are in the right - keep that in mind.

Reply

  • Hello 

    Sorry to hear you are in this situation. GPs can be a tricky bunch. Can I suggest contacting your local CCG?

    Ask to speak to the project manager for adult mental health pathways/adult neurodiversity. Ask them to confirm the steps/criteria GPs should be following/applying in your area and explain that your GPs are in effect locking you out from accessing help.

    Here are the NICE guidelines for adult ASD assessment: https://www.nice.org.uk/guidance/cg142/chapter/Recommendations#identification-and-assessment-2

    Have a read through and try to evidence where your GP is not meeting these guidelines. If you can (it will be hard, I know) rise above the emotions and use the evidence to embarrass the GP/CCG.

    The tide on accessing assessments for neurodiverse adults is turning against old-fashioned attitudes but we need to stick together and persist to make sure things continue to improve for us and others.

    You are in the right - keep that in mind.

Children
No Data