Does anyone else feel like a perfect-family-ruiner?

I don't want to keep burdening my wife with this stuff - to be honest, she already knows about how I feel about my family. My family constantly reassure me that they aren't ashamed despite what I put them through growing up with undiagnosed Autism but I have to say, I don't believe them. How can I believe them when all around me programmes like The A Word and Atypical and numerous middle grade fiction books (I teach Year Six at a primary school) are painting us as complete burdens and embarrassments? I just feel like the public narrative of us is that we're perfect-family-ruiners as I call it (not the most innovative name, maybe, but the only one I can seem to come up with!). Everything in popular culture paints the poor non-Autistic people around us (our parents, our siblings) as the ones suffering because they have to endure us in their lives. Either that or we're a zoo exhibit - for example, I hate The Undateables with a passion and did even before I was diagnosed; sometimes it feels like I'm the only one who sees through that ableism. To me it's the same premise as a modern freak show, for able people to sit and watch at home and go, 'Awww, so sweet, so lovely, so inspirational'. Sometimes it feels like society don't seem to remember we're people and it really gets me down. It makes me not want to interact with my own family because I start projecting and convincing myself that they see me as nothing more than a burden. I start feeling sorry for them when I'm the one with the disability! I feel like a monster, a terrible older sister and daughter. Sometimes, when I was growing up, I'd look at the four of them and know they'd be better off without me. I still think that a lot of the time. I know this is really self-pitying but it would be nice to be accepted in the eyes of the world as a human being who didn't choose to be like this!

Parents
  • I'm so sorry to hear this...! I bet you have something important to give to the world around you. 

    It's amazing to have a partner who understands, though. 

    It seems many of us have had to forge new paths and find our own 'family'. All humans need connexion. And unfortunately the ones we're genetically consistent with might not have the skills or tools or understanding needed. Some are stuck in feedback loops or their own struggle with survival. Which doesn't mean they're allowed inside our vulnerability. I like to remind myself that trust is earned while respect is given (even when it is not given back). I enjoy earning the trust of others and expect the same. I also think it's ok to let go of (or have very long time-outs from) those who I don't feel a connexion with. Of course, we all have so much to deal with.

    I've often told my son to view others (literally everyone) like planets in our solar system where I am the sun (the imagery can be helpful). The closest, Those Mercuries - get the most time, get too see my strangest self, my vulnerabilities, the biggest investments, the best of intentions. There should only really be 2-3. And by the time we hit Earth, some are colleagues, and get random moments of the real me. But we might not have the capacity to walk through life together and that's OK. My family? Most are near Mars, some as far as Jupiter. Even still, some are satellites. The distance is relevant to the investment, and relative to the expectations. I can love from a distance. This imagery has been useful to me, especially when trying to assess what I need from another in context of what they might be willing or capable of being and what I might be capable of investing. 

    Hollywood scripts and screenwriting on the other hand is a proper mess. I've been in Post Production for some time. It's not just shows about Autists - it's most television in the States. They might hire a writer for concept and the pilot and then fire everyone except the least expensive (typically inexperienced) writer by the 2nd season. 

Reply
  • I'm so sorry to hear this...! I bet you have something important to give to the world around you. 

    It's amazing to have a partner who understands, though. 

    It seems many of us have had to forge new paths and find our own 'family'. All humans need connexion. And unfortunately the ones we're genetically consistent with might not have the skills or tools or understanding needed. Some are stuck in feedback loops or their own struggle with survival. Which doesn't mean they're allowed inside our vulnerability. I like to remind myself that trust is earned while respect is given (even when it is not given back). I enjoy earning the trust of others and expect the same. I also think it's ok to let go of (or have very long time-outs from) those who I don't feel a connexion with. Of course, we all have so much to deal with.

    I've often told my son to view others (literally everyone) like planets in our solar system where I am the sun (the imagery can be helpful). The closest, Those Mercuries - get the most time, get too see my strangest self, my vulnerabilities, the biggest investments, the best of intentions. There should only really be 2-3. And by the time we hit Earth, some are colleagues, and get random moments of the real me. But we might not have the capacity to walk through life together and that's OK. My family? Most are near Mars, some as far as Jupiter. Even still, some are satellites. The distance is relevant to the investment, and relative to the expectations. I can love from a distance. This imagery has been useful to me, especially when trying to assess what I need from another in context of what they might be willing or capable of being and what I might be capable of investing. 

    Hollywood scripts and screenwriting on the other hand is a proper mess. I've been in Post Production for some time. It's not just shows about Autists - it's most television in the States. They might hire a writer for concept and the pilot and then fire everyone except the least expensive (typically inexperienced) writer by the 2nd season. 

Children
No Data