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Adult Social Services (the Spectrum Star) ***Updated***

☕Tassimo ☕

Hi, everyone.

I've just received a letter of invitation by the local authority to attend a course of brief virtual one-to-one appointments to complete the autism star. Does anyone have any experience of these kind of sessions and/or know what is meant by the autism star?

***Thanks to another forum member, I've found a lot of information about the Spectrum Star program. The Spectrum Star has been designed for adults of any age, to enable them to manage autism and help them make the choices that are right for them***

the spectrum-star

It's completely voluntary, so I don't have to attend. The very idea that the local authority is providing this service makes me wonder whether it will be worthwhile. If it had been a professional charity, I might feel more inspired to attend. With specialist charities and/or private companies, there's more chance of interacting with competent and motivated professionals with the latest information on autism. I am currently working with the I Am Charity in Greater Manchester, and the people who work there are brilliant.

But, the local authority? My blood runs cold at the very thought of having to interact with an autism service run by the local authority. Will be just like all the other poorly delivered adult services with the same set of mediocre social workers without specialist knowledge? They always seem more interested in ticking boxes, taking short-cuts and finding ways to avoid spending any money on service users than helping and supporting people.  This may sound cynical, I admit, but I think everyone accepts that any support provided to adults with physical or learning disabilities, or physical or mental illnesses by the local authority is going to be, at worst, poor, and at best, mediocre.  The very fact they are calling them brief appointments suggests this. 

Recently, I supported my niece with a mental health crisis, and I got to witness first-hand the staggering incompetence and blatant dis-interest of local authority social workers; not to mention the chaos of the actual adult services department.

I'm just wondering whether it will be more harmful for me to attend these sessions than to pass them up.

I would be very grateful to hear of your experiences with adult services as autistic individuals (good and bad) and also to hear about your experiences with autism star. I have an open mind and want to hear about good experiences with social workers and adult services as well as the bad ones. 

Thank you in advance!

Parents

  • Hi Tassimo,

    Firstly, I would like to say, I have no experience either good or bad.I dont even know what the autism star is?

    I was diagnosed ASD in March 2021. I am trying to find my way at the moment. I can hear your frustration in your post. What I am typing is just "MY" opinion.

    Everyones experience is "individual" what is taken from that experience (good / bad) is a knowledge of some form. From that knowledge, changes can be made to improve a service offered and could perhaps, improve future experiences for the individual or others. It is a shared understanding that can provide a good base to build upon, so that a better structure can be established.

    The fact that a local athourity is providing a service, would suggest there is a growing awareness and recognition of people that need understanding. Even if this is a mediocre service and one person has been helped, then it is worthwhile for that one person.

    Perhaps, even at a brief appointment an individual can express from their experience, what is or is not benifical to them, which may improve how the appointment is structured in the future for them and others with similar experiences. This in it's self would be worthwhile.

    I wish you well.....

  • in reply to Markochef65

    Thank you, Mark, for taking the time to respond. I'm on the internet trail of the autism star as we speak.  I'd love to hear some real success stories in local authority adult service provision, but it seems to be a rare experience.

    And congratulations on your recent diagnosis. Mine, too, is very recent and I am oscillating between total acceptance and total rejection of the diagnosis.

  • in reply to ☕Tassimo ☕

    Hi Tassimo,

    I hear what you are saying! I totally understand where you are coming from! Perhaps, you can keep me updated on your progress regarding the autism star and your journey / experience?

    A comment on your "Congratulations" thank you I think? lol lol

    But on a lighthearted note that has just popped in my head regarding acceptance and total rejection..(for me) "IF"(Im sure it is) my diagnosis is correct...

    Why should I reject it? its been my friend for all my life! you have actully given me a good thought for today Tassimo THANKS

Reply
  • in reply to ☕Tassimo ☕

    Hi Tassimo,

    I hear what you are saying! I totally understand where you are coming from! Perhaps, you can keep me updated on your progress regarding the autism star and your journey / experience?

    A comment on your "Congratulations" thank you I think? lol lol

    But on a lighthearted note that has just popped in my head regarding acceptance and total rejection..(for me) "IF"(Im sure it is) my diagnosis is correct...

    Why should I reject it? its been my friend for all my life! you have actully given me a good thought for today Tassimo THANKS

Children