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Fretting about the validity of a private diagnosis

WeaverBird

Hi,

After the helpful responses on my last post I've started down the route of self-referral to our local NHS service. But I'm also really tempted given the long wait to book a private appointment. But I can't shake the idea that I'm basically paying someone to give me the answer I want that I'm autistic. Has anyone else struggled with this? What did you decide in the end? I recognise I'm lucky to be able to choose.

Thanks

Parents

  • Hi Weaver Bird.

    The NHS is there to use,once noone uses it,everyone will pay.

    If u wanna try to hurry it a little say to them you are finding it hard to cope,and ask GP to write to them to try and say that. Took 4 yrs for me(was 49),but mostly cos they made it too hard locally(closed down service!),and i nearly gave up. Whole of NHS is about budgets-CCG's are a nightmare,stopped relevant treatment for me for decades and treated like a criminal by CCG(health funders,mostly swayed by cost cutting well paid council workers) and council.

    Just don't be fobbed off by them,particularly if they say is mental health,cos most appalling service in NHS,not funded at all.

    I still have more in depth assessment coming up and guarentee CCG and mental health will interfere with diagnosis and say either i have ADHD or some random personality disorder-as know i won't work with mental health!

  • in reply to Deleted user

    Yep, this is my other angst. The privatisation of NHS services makes me feel sick and I know that even using private services further undermines NHS provision. And yet the idea of trying to survive without knowing and support for 12-18 months feels pretty untenable at the moment.

  • in reply to WeaverBird

    Couldn't agree more. Sadly, I can't get the help I need through the NHS quickly enough to help me with other problems which are becoming dangerous.

    My house is desperate for basic maintenance, but a house will be irrelevant if I'm not here to live in it. It goes against the grain for me but my only choice is to pay for this now.

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  • in reply to WeaverBird

    Couldn't agree more. Sadly, I can't get the help I need through the NHS quickly enough to help me with other problems which are becoming dangerous.

    My house is desperate for basic maintenance, but a house will be irrelevant if I'm not here to live in it. It goes against the grain for me but my only choice is to pay for this now.

Children
  • in reply to Dawn

    I understand about why u would pay for a private diagnosis,cos so long and other problems with housing. I done the same cos MRI i wanted in past wouldn't get funded-but who assessed me beforehand,an NHS neurologist! I gave up with it-cos he tried to tell me i don't know where i received a bang to the head,absolutely crazy! Have had MRI since,and proved bang was where i said as showed up in gaps under skin.

    I was in a situation where i attended A&E saying i wanted to kill myself-rather than section me,CMHT who just discharged me then,told Police to arrest me(cos they couldn't deal with someone with brain injury!),and i spent 36 hours in a cell about to go to court(had to make up a charge to hold me so long!). All because of refusal to section me-CMHT after i begged them to section me jsut told me in a cell "youre just jealous" !

    Then Neuro wasted year of my life with 3 assessments to end up with same diagnosis in something she not trained in! I refuse to ever deal with CMHT ever. Without them and new Autism diagnosis is best thing that ever happened,as actually makes sense,rather than CMHT treat me as a criminal or a liar!