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Autism

Caroleanne

Having problems with my autistic son his behaviour is quite bad. The last year with him has just been one thing after another. He has so many meltdowns doesn't want anyone sitting in the same room as him. Hes ran away from us doesn't want to go anywhere and just refuses to get washed and changed he is 21 and doesn't have day  time placement.    

  • Hi Caroleanne,

    Thank you for sharing this with us. May I suggest contacting our Parent to Parent service? They offer emotional support to parents and carers of children or adults with autism.

    Their contact number is 0808 800 4106. Leave them a message and they should call you back as soon as possible at a time that suits you. You can also contact them via this webform: https://www.autism.org.uk/what-we-do/help-and-support/parent-to-parent 

    You may also like to look at our information about behaviour including meltdown: https://www.autism.org.uk/advice-and-guidance/topics/behaviour

    Hope that helps!

    Kindest regards.

    Eunice Mod

  • In order to get more professional help

    You may like to contact our Autism Helpline team who can provide you with information and advice.

    https://www.autism.org.uk/what-we-do/help-and-support/helpline

    You can call them on 0808 800 4104 (Monday to Friday 10am to 3pm.Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser.

    All the best,

  • Caroleanne,

    Keep a journal of what's happening before the meltdowns, what changes occured right before the meltdown began, record as much as you can and look for common factors.

    Sensory input can trigger meltdowns, he's possibly running away from what overstimulates him. Those of us Autistic lack the filter that releases irrelevant stimuli and information, by lacking the filter the head can overload and make him shut down. Ask him is there anything in the environment disturbing him.

    Individuals on the spectrum unable to verbally communicate try communicating, try to tell people something with behaviour instead of language.

  • Have you considered what is causing these difficulties? The displayed behaviour is generally due to an unmet need or difficulty of some kind. Its up to us parents to unpick what it is in order to help the child & subsequently those impacted by said challenging behaviour.

    Sorry if it appears like I'm teaching my grandmother how to suck eggs btw. Just the first thing fact that occurred to me. No matter how badly parents are feeling, the struggling person feels much worse. Good luck.