Should I refer myself for an assessment? + Impostor syndrome + what to say to my parents?

Hi there, everyone. I'm sorry if this post isn't permitted - I'm not an adult yet but I will be in a month from now, and so I wondered if it was worth self referring to the Tower Hamlets Autism service run in collaboration with the National Autistic Society.

The reason why I want to self refer is because I looked widely into autism traits in women for the past 5 months, looked at the DSM-5 for autism and its many comorbidities, and concluded that this just fits. I don't know how exactly to explain it, but it explained things such as my aversion to so many foods, my gastrointestinal issues, my hyper-fixation on a lot of things and how part of me enjoys socialising at times but afterwards I just need a lot of time to recover. I don't know if this is allowed but I actually made a document listing my symptoms in accordance to the DSM-5 along with comorbidities I think I may have that I also think are worth looking into. I can PM it to anyone who would do me the honour of reading it.

This brings me onto the main part of my post. I want to self refer for an autism assessment. Throughout all my time in CAMHS and going in and out of psychiatrist's offices, GPs and hospitals, I never felt like the words I was being given helped. CBT didn't do very much for me - I actually completed the course on my own while my therapist was on leave, and she complimented me saying I did all her work for her, but I didn't feel any better. I also did CBT for my OCD with my current therapist, and I appreciated the sentiment but it didn't necessarily alter any cognitions I had. If anything, I just doubled down on my analysis and broke down more. I feel like unless I don't try something else, I might stay in a strange state of not understanding myself forever when this is the closest I've gotten.

However, my therapist doesn't want to refer me. She thinks that because I show good social reciprocity and I make eye contact, I can't possibly be autistic. So she ended the conversation there very quickly. I understand, but at the same time I want to push more. But at any rate, my CAMHS time is nearly up as I turn 18 a month from now, so I was considering a self referral to the Tower Hamlets autism service. I would just like to know if anyone has had any experience with this system, or with the NHS in general, and if it is worth going, especially with some GPs and the outdated views on autism in women? Anything I can say to my parents that will convince them will also be greatly appreciated.

Thank you very much to anyone who reads this.

Parents
  • Hi NAS73035,

    Thank you for sharing this with us. You may like to look at our information about autism spectrum disorders:
    https://www.autism.org.uk/advice-and-guidance/what-is-autism

    If you were interested in finding out if you are on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one: https://www.autism.org.uk/advice-and-guidance/topics/diagnosis

    Furthermore, it is important the professional you see has experience of autism spectrum disorders. You can find details of diagnostic services on our Autism Services Directory in the Assessment and diagnosis section: http://www.autism.org.uk/directory.aspx

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Friday 10 am to 3 pm. Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser.

    Hope that helps.

    Kindest regards,

    Eunice Mod

Reply
  • Hi NAS73035,

    Thank you for sharing this with us. You may like to look at our information about autism spectrum disorders:
    https://www.autism.org.uk/advice-and-guidance/what-is-autism

    If you were interested in finding out if you are on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one: https://www.autism.org.uk/advice-and-guidance/topics/diagnosis

    Furthermore, it is important the professional you see has experience of autism spectrum disorders. You can find details of diagnostic services on our Autism Services Directory in the Assessment and diagnosis section: http://www.autism.org.uk/directory.aspx

    If you have further questions, you may like to contact our Autism Helpline team. They can provide you with information and advice about getting a diagnosis. You can call them on 0808 800 4104 (Monday to Friday 10 am to 3 pm. Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser.

    Hope that helps.

    Kindest regards,

    Eunice Mod

Children
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