Medical records and autism diagnosis - records missing?!?

Hello all

I just have been filling in my PIP reassessment (that time of year again) and thought given tendency for medical assessors to suddenly decide you aren't autistic or such like I thought I would access my GP records to get my report.  My doctors has a new online portal and I used this to see my records and was really surprised.

I lived in Hull for a few years and it was during my time there I was diagnosed as Autistic and not schizophrenic as the GP thought when they referred me. This was how my ASC was named if that makes sense. Only issue is I have no records for the 2 years and 10 months I lived in Hull - they are literally none existent.  My other records don't deny I am ASC but I cannot actually get the diagnosis report or anything because my records have not been transferred or been updated.

I cannot actually remember which doctor it was or much details about where the GPs were etc. because my ex partner dealt with that sort of stuff (She was a nurse); I did have paperwork but it was destroyed by same ex when we split up.

Does anyone know if there is anyway I can find out details of the report, or if it even still exists? I cannot afford private diagnosis and feel my doctors won't refer me again for one. I am still waiting for an urgent referral from August 2019 so don't fancy chances if I asked for help with it.

Parents
  • Don't worry about it for the PIP, the fact you are autistic, or any other condition is ignored.  They are only interested in whether you are able to do certain things, no matter what your impairment or disability is.

    Have you approached your GP directly about the notes.  The online notes are only very sketchy in a lot of cases and not everything is on there.  There is a lot of my medical history not on the online portal, but if I go to my GP the notes are there.  Which just makes me wonder what the value of seeing the medical notes and checking them at home actually is.

Reply
  • Don't worry about it for the PIP, the fact you are autistic, or any other condition is ignored.  They are only interested in whether you are able to do certain things, no matter what your impairment or disability is.

    Have you approached your GP directly about the notes.  The online notes are only very sketchy in a lot of cases and not everything is on there.  There is a lot of my medical history not on the online portal, but if I go to my GP the notes are there.  Which just makes me wonder what the value of seeing the medical notes and checking them at home actually is.

Children
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