Private diagnosis - are they all widely recognised

Sorry if similar has been posted before but I am new to this forum and finding a little hard to navigate.

I am the parent of a child (now considered an adult, as they have reached the age of 18) who we all believe is on the autistic spectrum and has had related issues throughout their childhood, but never got diagnosed despite a referral to CAMHS as a child (due to the long delays). We have now approached the GP about the possibility of a referral for an NHS diagnosis but it seems even if we are lucky to get this waiting lists will be excessive and we would like a diagnosis before our child starts university next year (hopefully).  We are therefore looking to go down the private diagnosis route.

Googling brings up quite a few results but they do not strike me as all the same in terms of the methodologies used.  Is one private diagnosis as good as any other or are say some providers or types more accepted than others should we wish in the future to use the diagnosis to request further support for our child be it in university or elsewhere?  Is there say some question we need to ask a provided to ensure their diagnosis could be widely recognised?

Obviously we will have a number of things to consider in selecting any private supplier for the diagnosis, not just the cos,t but the format may need to be something our child is comfortable with and we would want avoid any excessively long diagnosis so say we could get a diagnosis before the start of the university year, but my main worry is we could spend money on such a diagnosis but find the provider's diagnosis is not widely recognised.

Does anyone have any experience in such matters?

Thanks

Parents
  • Short answers -

    Your company health insurance may cover the costs - worth looking into.

    Some companies basically charge you to fill the free on-line tests in and provide nothing at the end - always talk to the company and find out what they supply and proof that it is accepted by DWP and NHS

    Your local ASD or mental health team should be able to point you in the right direction for a private assessment.

    Costs typically seem to be between £1200 and £2k

    Support after a diagnosis is patch or non-existent - universities can be very helpful (speak to their student assistance team) and the DSA can provide money for mentors or special equipment etc - but you've left this all a bit late if they are looking at uni for Sept 21.

    I was diagnosed in my early 40s - the whole thing took a couple of hours as in informal chat (I guess he was doing all the questions in a conversation framework) and that was it - back in the day, my consultant was *the* top man in the country - he wrote most of the books.

    I am very, very Asperger's so I'm probably very easy to spot and diagnose.

  • who ,,,,,,   the "Simon Baron-cohen" ? 

  • Could be - I wasn't paying attention at the time - my wife arranged everything - it all happened so fast - from my friend's wife (a teacher) mentioning over a Chinese meal that I had all the traits - to talking to the gp about it and getting the ok from the insurance company and within a week I was sat in a very nice private clinic in a lovely country house setting.

    I just remember 'clearly has Asperger's' being written many times in the report.   Smiley

Reply
  • Could be - I wasn't paying attention at the time - my wife arranged everything - it all happened so fast - from my friend's wife (a teacher) mentioning over a Chinese meal that I had all the traits - to talking to the gp about it and getting the ok from the insurance company and within a week I was sat in a very nice private clinic in a lovely country house setting.

    I just remember 'clearly has Asperger's' being written many times in the report.   Smiley

Children
No Data