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Private Diagnosis Route.

The Riddler

Now I realise this topic has been posted before, but quite frankly I’m too lazy to find it.

So I’ve been waiting for a diagnosis for nearly a year now and the NHS, which lets face it is a shambles, first referred me to the local service. They told me it would be nearly 3 years to get seen. Therefore I told my GP there were private organisations that took NHS referrals, so I was taken off the NHS waiting list and referred to Healios. Expect 3 months later, after many emails, I discovered that the GP had completely balls’d up the referral  and I hadn’t been referred at all!

Anyway, long story short getting fed up of the constant lies and catalogue of errors, so thinking I’ll just refer myself and pay privately.

What are people’s experience and recommendations for private practices. Ideally I want to do video, not face to face. More options I have the better.

Parents

  • I went private with The  Lorna Wing centre and mine took about 6 months. There was a lot of back and fourth with paper work and lots of chasing information etc. It deffo could've been done quicker but that was down to me not being able to find certain paperwork and the GP messing around with my medical records. 

    All in all the experience was brilliant. Any questions I had was answered over email, my assessment was done via webcam due to the pandemic, which they did charge less for which was beneficial. Sue, the lady who did my assessment, was so lovely and did a really good job making me feel at ease, listened to and non judgmental.

    I heard and read a lot of horror stories about going through the NHS, the unbelievable waiting times and peoples incompetence with the actual process etc, just like how you've explained your experience, which is why I decided to go private. If you can afford it, I highly recommend. 

  • in reply to Emmy

    I was lucky(?) - my parents were both dead so there was no-one to contact for corroborating evidence which meant it was just me to talk to.        I have a feeling that my mother was undiagnosed Aspie too but was in total denial - I think she would have complicated things by giving 'normalising' answers to everything.

  • in reply to Plastic

    Sorry to hear that. My Dad has dementia, so barely remembers who I am and my Mum had left before I was 5. We saw her a few hours a month, so don’t think she’s a reliable source of information. Besides she lives in Spain now. I hope to eliminate the need for others to be involved because I think it’ll just complicate things.

  • in reply to The Riddler

    Sorry to hear about your dad - but in a way, it really does simplify your path forward because you don't want people muddying the water.

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