Positive outlook

Hi. I first joined this a few months ago. Still waiting for diagnosis, waiting time is roughly 2 years on nhs in my area. I am hoping to find some positive conections. Although I relate to a lot of the discussions here I feel a lot make me feel down and are more of what I feel all the time on my own. I would like to feel some positiveness and joy. I am female and nearly 50 and think I am HFA tbc. Would like some contact with other older women with hfa in the hope we can be of some support to one another maybe. Share expereience and help maybe?

Parents
  • Hi there, I am still waiting to be assessed .... from my behaviours I am suspecting HFA too. I decided to go down the formal route (NHS) after watching how my dad was cared for when he went into a residential nursing home in his 80s. If you don't have an NHS diagnosis on your medical record, the NHS do not have to consider your unique needs in your care plan. This is not important to me in my 50s, but it may make some difference if I need this to be taken into consideration later on. I know it sounds a bit bleak, but I had my eyes opened with my dad. It is simply a matter of legality, the NHS do not consider any other diagnosis but there own and with that comes some legal protection under UK law. I am also female and yes, it can be very lonely. I am hoping that I may discover a social support group with others like me one day, until then I have a good husband and cute dog, don't worry about talking to your dog, lots of people do x

Reply
  • Hi there, I am still waiting to be assessed .... from my behaviours I am suspecting HFA too. I decided to go down the formal route (NHS) after watching how my dad was cared for when he went into a residential nursing home in his 80s. If you don't have an NHS diagnosis on your medical record, the NHS do not have to consider your unique needs in your care plan. This is not important to me in my 50s, but it may make some difference if I need this to be taken into consideration later on. I know it sounds a bit bleak, but I had my eyes opened with my dad. It is simply a matter of legality, the NHS do not consider any other diagnosis but there own and with that comes some legal protection under UK law. I am also female and yes, it can be very lonely. I am hoping that I may discover a social support group with others like me one day, until then I have a good husband and cute dog, don't worry about talking to your dog, lots of people do x

Children
No Data