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Living on a psychiatric ward

lollypsb

I am awaiting diagnosis for ASD whilst living on an Eating Disorders Unit and finding it an almost impossible environment to cope with. The space between mmeltdowns is getting shortworsen my stimming is getting worse. I feel that my possible ASD, which the eating disorder is really secondary to, is not being treated at all on the ward and that it is hindering my recovery. I feel really desperate and don't know what to do next- everyday I tell someone the difficulties I am experiencing but there is no action. How do I cope? 

Parents

  • If you have access to the internet I would suggest you search for the NICE guidelines on adult autism, put in a search term of "eating disorder" or "anorexia" and see if there is some relevant material (I think there is) and quote it to somebody who is reasonably sympathetic - or get a family member or advocate to do this on your behalf.  They should know that a high proportion of people with eating disorders have ASC, but of course the chasm between best practise and acutal practise is very large - so whether you can navigate this is down to a lot of factors beyond your control - good luck.

Reply

  • If you have access to the internet I would suggest you search for the NICE guidelines on adult autism, put in a search term of "eating disorder" or "anorexia" and see if there is some relevant material (I think there is) and quote it to somebody who is reasonably sympathetic - or get a family member or advocate to do this on your behalf.  They should know that a high proportion of people with eating disorders have ASC, but of course the chasm between best practise and acutal practise is very large - so whether you can navigate this is down to a lot of factors beyond your control - good luck.

Children
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