Adult autism diagnosis and parental estrangement

Hello everyone! I figured that since I was obsessively back-reading the forums I may as well actually join and start posting.

I'm at the stage in pursuing formal diagnosis after my GP referral but before I am officially accepted onto the waiting list. My GP indicated she'd be following the diagnostic pathway I understood was usual to my borough, which is screening through community mental health service before referral to the local adult autism service. So I was very surprised today when I got an envelope directly from the local adult autism service, plump with questionnaires for me to fill in: the AQ 50, the EQ, and the Relatives Questionnaire (CAST).

The problem, as you may have anticipated from the subject of this thread, is that my parents are estranged. I really do not have anyone who can fill in the relatives questionnaire. The letter says that the completed questionnaires must be sent back within 2 weeks of receipt, or my referral will not be processed further and I won't be placed on the waiting list.

After an evening of discussing this with formally diagnosed friends, plus my worries going round and round my head like a washing machine, my plan is to call the local autism service when they are open later this week so I can explain that I can't return the full complement of questionnaires, but that I do actually know most of the answers to the questions they're asking and can provide a lot of information about my childhood in lieu of family informants.

In my search for previous similar topics on these forums, I saw many posts explaining lack of family involvement at the assessment day itself did not necessarily prejudice the diagnostic process, particularly if you're able to offer your own comprehensive personal testimony, which is very helpful when considering that later stage. However, I haven't yet managed to find anything discussing this specific stage of screening. I'll continue searching myself of course, and I'd really welcome any links to similar threads you might kindly show me.

Parents
  • Dont worry about it.  My parents are deniers.  As far as they are concerned I dont have ASD.  After I got my letter, my dad said to me it changes nothing, so why did you waste your time.

    I explained this attitude to the psychologist at pre-assessment and in the end it made not a jot of difference to the diagnosis process.  When they assess you they will be able to tell very quickly if you have the traits.

  • I know this conversation thread is old. 

    I personally think it would be perverse if people who may have been denied a diagnosis as a child because of denying parents were further denied a diagnosis as adults again…… because of parent deniers. 

    In such instances school reports, notes from medical archives (my 40+ year old medical notes were extremely helpful) diaries and even family photos may hold some clues which could potentially be helpful for assessment purposes. 

Reply
  • I know this conversation thread is old. 

    I personally think it would be perverse if people who may have been denied a diagnosis as a child because of denying parents were further denied a diagnosis as adults again…… because of parent deniers. 

    In such instances school reports, notes from medical archives (my 40+ year old medical notes were extremely helpful) diaries and even family photos may hold some clues which could potentially be helpful for assessment purposes. 

Children
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