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Autism assessment and transgender

NAS66316

Hi I'm new here 

Ive just come home from my last appointment for the autism assessment in Sheffield. I feel very down and upset, they told me they understand that I have problems and said I hage traits of autism but are not willing to diagnosise me because I'm transitioning... Well for a start me transitioning has nothing to do with autism and shouldn't be an excuse and secondly I started transitioning and have been on hormone when I was 15. I'm 19 in 4 weeks exactly I think shouldn't mean anything neither.

Is there a way to appeal or something. I feel so let down by the NHS with this issue. Peers and teachers have always wondered if I'm autistic and treat me differently because of this. I was really hoping to get more help but I guess I'll have to struggle for however long I'll put up with all this again. 

Parents

  • I don't get how transitioning could affect an autism diagnosis. I told my psychiatrist that I'm a crossdresser, and told the rest of whoever deals with me at the East Brighton Mental Access Team, and yet I still got a diagnosis. I also have a nephew, that is trasitioning into my niece, that is also diagnosed with Apsperger's.

    Best thing to do is keep getting re-referred, badger the hell out of them and don't give in until they give you the diagnonsis. If you're showing even the vaguest of autistic traits then that to me means that you are on the spectrum.

  • in reply to Bulbz!

    Thank you for replying. I'll wait to get the report (the letter) from her and see what I can do then. I probably should have talked about getting frustrated with people and getting angry, I do get the urge to hurt myself or hit something or break something when I'm home.

    It's a shame because I had an LSA that was thinking I might be on spectrum (she didn't know about my anger issue to that extent) 

    This is the second assessment I've had now. My first one was with CAMHS when I was 16 and they gave me an ADOS that was made for a 10 year old. Their letter said that the points or whatever would put me on the spectrum but because of my anxiety they wouldn't diagnose because they thought it was ' a white coat syndrome' moment and inflated the criteria. 

    I waited 2 years for this assessment on the waiting list and for them to waste my time travelling to Sheffield twice to give me that answer was very hard. 

    She did suggest going to speech therapy but said I'll have to go to my gp to be referred. 

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  • in reply to Bulbz!

    Thank you for replying. I'll wait to get the report (the letter) from her and see what I can do then. I probably should have talked about getting frustrated with people and getting angry, I do get the urge to hurt myself or hit something or break something when I'm home.

    It's a shame because I had an LSA that was thinking I might be on spectrum (she didn't know about my anger issue to that extent) 

    This is the second assessment I've had now. My first one was with CAMHS when I was 16 and they gave me an ADOS that was made for a 10 year old. Their letter said that the points or whatever would put me on the spectrum but because of my anxiety they wouldn't diagnose because they thought it was ' a white coat syndrome' moment and inflated the criteria. 

    I waited 2 years for this assessment on the waiting list and for them to waste my time travelling to Sheffield twice to give me that answer was very hard. 

    She did suggest going to speech therapy but said I'll have to go to my gp to be referred. 

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