Unsure whether I am autistic and whether to pursue a diagnosis

Hi,

I'm a 32 year old guy. I have never been diagnosed but I have always had difficulty relating to other people and felt like I am different from other people.

I suspect I might be on the spectrum but I also have a lot of doubts because I feel like I am very high functioning in parts of my life and when I am in my comfort zone I convince myself everything is fine and I am just exaggerating things. (And then I have self doubts about the self doubts because I wonder if I've just been in denial my whole life, argh!)

In the past I guess I confused this with anxiety. I started to look into ASD seriously after I got some counselling and the therapist brought it up with me. It made a lot sense because I had so much difficulty even talking to them in the first place and I literally had no idea how to identify/describe my emotions. I also mentioned it to another therapist who agreed that the way I describe things does sound like ASD.

Both of them said that I should think carefully about seeking diagnosis because there are consequences I should consider, for example I might encounter discrimination if I declared it to employers. I am about to start some other therapy for social anxiety and the person I spoke to said that even without a diagnosis if I came to a conclusion about what I think, it would help them to help me better. But I have no idea how to do that.

I made a list of all the things that make me suspect ASD and all the doubts I have, and compared it to https://www.autism.org.uk/about/diagnosis/adults.aspx and when I write it down ASD makes sense. But then when I read about people whose ASD affects them more in their day to day lives I feel like that isn't me at all. I used to be friends with someone with Asberger's syndrome and I always felt like when he had difficulty with making eye contact for example, it was much more obvious than when I have difficulty with eye contact. But then again I see other people on this forum talking about imposter syndrome, and when people talk about masking that feels very familiar to me as well. Top of my list is I have always had a very restrictive diet and trying new foods is very hard for me. I can recognise this as definitely abnormal and it has severely impacted my life, but in the past I haven't connected it to ASD.

I did the AQ 50 test online and got 38, but that didn't really help me because it still feels ambiguous. I didn't know how to answer a lot of the questions because I just wanted to answer "it depends" for all of them.

I guess I want to know what other people in this situation have done. How did you come to a conclusion you were autistic? And also what should I consider before I pursue a diagnosis? What made you decide to do it?

I just want a diagnosis because it would give me an explanation for why I am the way I am and a way to understand myself better. Even if I didn't do anything else with the diagnosis I feel like that would be helpful? The main thing that scares me about getting a diagnosis is involving other people who know me, because I am single and I don't have a good relationship with my family. I don't want to open up to them about this, especially if I pursue a diagnosis and then don't get it...

Parents
  • I just want a diagnosis because it would give me an explanation for why I am the way I am and a way to understand myself better. Even if I didn't do anything else with the diagnosis I feel like that would be helpful

    You already have your answer. You don't need more reasons. 

    for me understanding and having a name for what was going on in my life was the key reason too. 

    The spectrum is so diverse it terms of how autism affects people, so they say if you met one autistic person, you met one autistic person. There are commonalities of course in the mechanisms of functioning which externally are observed as behaviours. So a lot of the diagnostic speak is completely unrelatable for autistic people experiencing autism from within.. It is not a linear spectrum but more of a constellation on multiple axis. 

    This is a good video by an autistic researcher that can help you to relate to autism in a personal way https://vimeo.com/lss/review/355199883/690247337fhttps://vimeo.com/lss/review/355199883/690247337f

    Also take a look here https://ndsa.uk/content/home/the-diagnostic-process/

  • Thanks for this Tinyexplorer! Both of those are links are really helpful and encouraging. I definitely relate to what the people were saying in that video and what you are saying about it being a constellation makes sense as well. 

    I am going to do some more reading about the diagnostic process as I think I should speak to my GP about this.

Reply
  • Thanks for this Tinyexplorer! Both of those are links are really helpful and encouraging. I definitely relate to what the people were saying in that video and what you are saying about it being a constellation makes sense as well. 

    I am going to do some more reading about the diagnostic process as I think I should speak to my GP about this.

Children
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