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What to do when the NHS says your not autistic?

MattyB

I recently had my autism assessment and have been advised today that they do not believe me to be autistic. This has left be disappointed and upset and quite frankly unsure what to do going forward. Deep down I still believe I am but that doesn't really count for much when the professionals say otherwise. Has anyone else had a similar experience? Would really appreciate any advice, thanks

Parents

  • It's really difficult when you've got together the courage and energy to pursue a diagnosis and you get a negative response. I was told by a psychologist a few years ago that I couldn't be autistic, and was refused assessment by my local NHS autism assessment service last year. My GP and and a different psychologist encouraged me to get assessed and I decided to go privately rather than push for the NHS assessment as I had little faith in the local service anyway, and I wanted to get it done sooner. I was diagnosed last summer.

    If you are female, or you did well academically at school, or you tend to be compliant, or you are good at masking then your autism might be harder to detect by assessors who aren't familiar with autism symptoms in people in these groups. The professionals can be wrong - not always, but they can be.

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  • It's really difficult when you've got together the courage and energy to pursue a diagnosis and you get a negative response. I was told by a psychologist a few years ago that I couldn't be autistic, and was refused assessment by my local NHS autism assessment service last year. My GP and and a different psychologist encouraged me to get assessed and I decided to go privately rather than push for the NHS assessment as I had little faith in the local service anyway, and I wanted to get it done sooner. I was diagnosed last summer.

    If you are female, or you did well academically at school, or you tend to be compliant, or you are good at masking then your autism might be harder to detect by assessors who aren't familiar with autism symptoms in people in these groups. The professionals can be wrong - not always, but they can be.

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