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What to do when the NHS says your not autistic?

MattyB

I recently had my autism assessment and have been advised today that they do not believe me to be autistic. This has left be disappointed and upset and quite frankly unsure what to do going forward. Deep down I still believe I am but that doesn't really count for much when the professionals say otherwise. Has anyone else had a similar experience? Would really appreciate any advice, thanks

Parents

  • Hi there, sorry you didn't get the result you wanted. It depends why you want a diagnosis. If you want a diagnosis for financial support then definitely ask for a second opinion. Alternatively, some Autism support groups can put you in touch with a third party assessor, who might do a more in-depth assessment - the results of which you can take to your doctor. For me, I know I have the autistic traits of (what used to be known as) Asperger's, but I haven 't gone through an official diagnosis yet - and I am not sure I am going to, because for me, I don't need a formal record to define who I am. Just knowing why I am different has been the biggest relief after almost 40 years of feeling like I don't fit in/rejection. 

Reply

  • Hi there, sorry you didn't get the result you wanted. It depends why you want a diagnosis. If you want a diagnosis for financial support then definitely ask for a second opinion. Alternatively, some Autism support groups can put you in touch with a third party assessor, who might do a more in-depth assessment - the results of which you can take to your doctor. For me, I know I have the autistic traits of (what used to be known as) Asperger's, but I haven 't gone through an official diagnosis yet - and I am not sure I am going to, because for me, I don't need a formal record to define who I am. Just knowing why I am different has been the biggest relief after almost 40 years of feeling like I don't fit in/rejection. 

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