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Contradictions post diagnosis

Eccentric1

So, I have a diagnosis of Asperger’s and have contacted Bristol Autistic Spectrum Service (who initially stated I was not on the Spectrum) and have now had an “overwhelming” response that My Asperger’s in not an Autistic Spectrum Disorder.

As NICE Guidelines say that Asperger’s is an Autistic Spectrum Condition then what is true?

Who can provide me some guidelines and identify support in a language that is black/white without contradictions?

Parents

  • Asperger's is part of the autism spectrum. Could the service be questioning the validity of your diagnostic assessment, rather than saying that Asperger's is not part of the autism spectrum?

    It might be worth contacting the NAS helpline to see what they say.

    When I looked at the website for the service you mentioned, it appeared that they are an NHS service that is part of an NHS Trust. It might be worth contacting the trust - if they have a PALS (patient advice and liaison service) you could try them first before you make a formal complaint, which is also an option. It looked like they had criteria to be able to use their services which included having an assessment report for a diagnostic assessment carried out along NICE guidelines. So if your assessment didn't fit their criteria you might be out of luck. If however they are not applying their criteria fairly then that would be good grounds for a formal complaint.

    My own experience is that NHS services, especially in mental health, have a gatekeeping mindset which is less about need and more about avoiding accepting referrals depending on demand. It's frustrating to be bearing the brunt of this, and complaining is not an easy option.

Reply

  • Asperger's is part of the autism spectrum. Could the service be questioning the validity of your diagnostic assessment, rather than saying that Asperger's is not part of the autism spectrum?

    It might be worth contacting the NAS helpline to see what they say.

    When I looked at the website for the service you mentioned, it appeared that they are an NHS service that is part of an NHS Trust. It might be worth contacting the trust - if they have a PALS (patient advice and liaison service) you could try them first before you make a formal complaint, which is also an option. It looked like they had criteria to be able to use their services which included having an assessment report for a diagnostic assessment carried out along NICE guidelines. So if your assessment didn't fit their criteria you might be out of luck. If however they are not applying their criteria fairly then that would be good grounds for a formal complaint.

    My own experience is that NHS services, especially in mental health, have a gatekeeping mindset which is less about need and more about avoiding accepting referrals depending on demand. It's frustrating to be bearing the brunt of this, and complaining is not an easy option.

Children
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